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Posted by philly on 29 March 2016 - 07:21 pm
yes totally normal. make sure you talk to the people you trust. sepsis is life changing. your priorities will change (for the better). write down your experience- I found that helped too. you might find you have PTSD... you might at some point need to speak to your GP about counseling... it all helps. stay strong
Posted by Leila on 12 September 2016 - 05:58 pm
Posted by Mark Sollis on 23 March 2014 - 09:02 pm
Posted by Gillianflutes on 29 May 2016 - 02:36 pm
Posted by mmoo on 28 November 2015 - 07:00 pm
Posted by admin on 01 April 2014 - 09:26 pm
What is sepsis?
Sepsis is a life threatening condition that arises when the body’s response to an infection injures its own tissues and organs. Sepsis leads to shock, multiple organ failure and death especially if not recognized early and treated promptly.
Sepsis is caused by the way the body responds to germs, such as bacteria, getting into your body. The infection may have started anywhere in a sufferer’s body, and may be only in one part of the body or it may be widespread. Sepsis can occur following chest or water infections, problems in the abdomen like burst ulcers, or simple skin injuries like cuts and bites.
Sepsis can be caused by a huge variety of different bugs, most cases being caused by common bacteria which we all come into contact with every day without them making us ill. Sometimes, though, the body responds abnormally to these infections, and causes sepsis.
Different types of sepsis
Many people can have ‘mild’ sepsis which can make them feel ill but doesn’t require treatment in hospital. Mild sepsis can result from chest infections, urine infections and other minor illnesses.
However, other patients develop severe sepsis, which means they become seriously ill and need hospital treatment straight away.
How would I know if I had sepsis?
If you or a loved one had a suspected infection, or certain risk factors like being very young or old, diabetic, pregnant or on long-term steroids, then you would need to know what to look for. Early signs of a ‘flu-like illness, chest infection, diarrhoea and vomiting or inability to eat and drink, together with one of the symptoms of sepsis should be taken seriously. Our Symptom Checker card gives a list of 6 symptoms to look out for.
Why does sepsis matter?
Sepsis is one of our biggest killers! Shocking, since so few people are aware of it, but sepsis claims 37,000 lives every year in the UK and costs the NHS £2.5 billion a year. In comparison, breast cancer claims less than 8,000 lives a year. By helping us to ensure the reliable delivery of basic sepsis care (the ‘Sepsis Six’), you can help us to save 12,500 lives every year and reduce costs by an estimated £160 million.
Posted by Balley77 on 05 September 2014 - 07:19 pm
I am so sorry to hear what you went through Terry. It is frightening how quickly Sepsis strikes, and there is such a small window of opportunity to treat it. If that window is missed or overlooked, it has devastating outcomes.
Things are obviously still ongoing with you at the moment, and still very raw.
I am sure you know that we are all with you on this one, and if there is anything we can do, please just ask or PM.
Posted by red squirrel on 19 February 2017 - 01:57 pm
Members have recently posted about how they can and do raise awareness within the NHS regarding sepsis.this is for anyone who would wish to do the same but are unsure about how to make a start.You dont have to be a patient/survivor to do this, although patients are encouraged.
In the first instance you can sign up to your local hospital news letter either by post or email this will inform you of any new initiatives taking place and how you may help.
Most hospitals now have a dedicated patient and public involvement department and in some cases can be contacted directly.where you could help in areas such as.....
Become a patient leader
Take part in projects and initiatives
Joining the register of readers to review patient information leaflets
Take part in decisions that affect how services operate
Join a patient- led assessment team
How to plan and provide services
Help junior and interns become more patient aware
take part in how to develop and change the way they provide services
Become a secret shopper for the hospital.
there are others also but they vary by region and they are not all sepsis- related
iv done some of these myself and have found them on the whole to be immensely rewarding,
Recovering patients may find some of these activities a little tiring as some may involve a whole day visiting wards, form filling and travel so pace yourself.some hospitals can arrange travel in certain circumstances also.
Posted by Supertractorman on 15 January 2017 - 11:03 am
Posted by Gillianflutes on 09 October 2016 - 06:19 pm
Posted by red squirrel on 11 September 2016 - 03:16 pm
Came across this from the NICE website,proposed new guidlines for the nhs regarding sepsis,including Dr Ron Daniels of UKST,and a short vidio with stella a sepsis survivor.
Posted by red squirrel on 23 August 2016 - 06:57 pm
I v been reading around and found some interesting stuff on post sepsis syndrome (PSS), Its taken from two studies one recent (2016) one not(2013).So what is it.
Post sepsis syndrome is a condition that effects upto50% of sepsis survivors they are left with physical and/or psychological long term effects such as...
*insomnia,difficulty getting to sleep or staying asleep.
*nightmares vivid hallucinations and panic attacks
*disabling muscle and joint pain
*decreased mental cognitive function
*loss of self esteem and self belief.
however this does not mean we will experience all of these effects for some of us it may be none,for others it may be one or all.i feel i can identify with most of them,maybe not all of the time,on the same day .the john hopkins study went on to explain that many sepsis survivors report symptoms of post traumatic stress disorder (PTSD).and that these risks are higher for people who are admitted to intensive care.It went on....
What can be done about PSS.
post sepsis syndrome must be recognized by doctors and health care professionals so that patients can be directed to the proper resources which may include referral for emotional and psychological support,counseling,cognitive behavioral therapy or assessment for physical support such as physical therapy.
awareness seems to be key
what are your experience of PSS.
kind regards ian
Posted by Palmiter on 31 March 2016 - 02:47 pm
Posted by Galli688 on 14 November 2015 - 09:11 pm
Every time I read new post it brings back memories, at the moment I am going through a really bad time with tiredness.
I am dropping off at the drop of a hat, anytime from 3.00pm onwards and can sleep for hours if I don't set my alarm and still go bed early and sleep. I get depressed thinking there is no end to the symptoms, different ones cropping up all the time I just wish I had a magic wand. I can't walk anyway because my knees feet and everything hurts, if you hear of anything that helps please let me know. Where are you from I would love to go to one of the meetings but don't want to go alone.
Posted by Libby on 26 June 2015 - 08:28 am
Yes, unfortunately, we would consider it perfectly normal to feel so exhausted following even a short bout of sepsis. Seven weeks is very early on in your rehabilitation from this illness. I'm glad your GP has taken it seriously though- often people just get told to 'pull themselves together' and get very little help at all. Sometimes the autonomic nervous system can be affected which can lead to palpitations, dizziness, excessive sweating, bladder control problems etc (anything which is under the body's automatic nervous control), so it would be good to get the physician to just check you over. Usually, these things settle in their own time. Generally, you are looking at months rather than weeks.However, you should improve during that time - you just may not notice the small changes as you go along. Keeping a diary of your progress can help you see these improvements.
We have a 'Survivors Booklet', which you can either download from our website - under 'info for the public' or if you phone the office on 0845 606 6255 they will send you a copy.You could take it with you to show your GP. It goes through what to expect. There's also 'A Guide for Patients and Relatives' which you and your family may find helpful. Have a look at our 'IN Touch' service as well.
You will get there.
Posted by Hayley's mum on 27 January 2015 - 01:16 pm
I though I would share my experience of taking posters, leaflets and information cards to professionals. I attended the North West volunteer meeting a few days ago and decided to take some publicity materials to share locally. This morning I was due for a check up at the dentist, so I took some leaflets and cards with me. I gave them to the receptionist and asked if they could discuss them at their next practice meeting. The man on reception was very interested and the people behind reception all agreed this was something they could do. I then visited my local, independent pharmacy. I took a poster for the Manchester support group meeting and the leaflets and cards. The person on the counter was very interested and said Sepsis had been mentioned in relation to her Father in Laws death, although she didn't know what it was. They were very happy to take the materials and promised to use them. I then visited the practice nurse for a screening appointment and once again gave her a poster for the support group, plus a selection of posters and leaflets. It was all much easier than I had anticipated and people seemed genuinely interested, so if you want to do a little local publicity perhaps have a go.
Posted by Gillianflutes on 29 April 2018 - 10:39 am
Posted by Gillianflutes on 22 July 2017 - 05:03 pm
Posted by davegore on 10 March 2017 - 09:59 am
good to see the word and the symptoms being spread for more people to see