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recovery ups and downs


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#1 Fahy

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Posted 08 March 2017 - 05:27 pm

Hi all, I am new to this forum,reading through other peoples problems after sepsis I can relate to many of the symptoms especially the tiredness and muscle pain.

For almost two years i had been suffering my crp inflamation markers kept rising but my Gp and after several hospital admissions and scans blood tests etc.. no one could explain what is wrong with me.

March last year I was once again admited this time i started to dilapetate very quickly I was in HDU, I couldnt eat, hardly talk and very confussed. My husband and family was told I had severe sepsis and thought I could have lymphoma.

 

After discharge I had to try and build my life it was like starting to learn everything all over again I hadnt been eating I lost 5stone in very little time so had to encourage myself to eat.I had muscle waistage of my legs so walking was painful.

Fortunatly after a year I have become stronger and have my appetite back and the specialists have now ruled out lymphoma.

 

I am still left fatigued and with muscle pain I feel to tired to return to work .I am still under infestigation and have follow up appointments with infection control clinic,previous to my last appointment I was doing well and my crp readings coming down nicely and was no longer anaemic.

 

I was feeling better and hope I was turning a corner,only a week later I started feeling even more tired and the muscle pain severe.I went to see my consultant who said my crp levels had doubled not good.

Iam now waiting to have a chest x-ray and abdominal scan.

will this ever end


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#2 Gillianflutes

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Posted 09 March 2017 - 07:18 am

Best wishes to you. Like you, I have continued raised CRP levels but no one can explain why. The road you have been on sounds tougher than mine but at times I also wonder when it will end. I have begun to appreciate more and more the tiny steps forward. Steps that we might miss because they are so small. Hope your symptoms ease a little. Be good to yourself. X

#3 davegore

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Posted 09 March 2017 - 05:39 pm

I will second what Gillian says, I am realising too that it's sometimes the tiny steps that matter, but again, best wishes to you in your recovery.

 

Dave



#4 hollydollysmum

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Posted 09 March 2017 - 10:16 pm

6 years on iam still sore, breathless and weak, I've been tested for everything under the sun because my lymphatic system is constantly swollen and seems to be scarred, no one has seen this before. I still go for tests and still no one knows what's wrong, my circulation is rubbish and iam constantly cold and my skin goes blue, I cannot even go down a chilled food section. But iam alive, sometimes you do get down. Sepsis is a bugger!
Hope you feel better soon
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#5 Fahy

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Posted 10 March 2017 - 02:54 pm

Thank you all for your response it feels so good to be able to talk to people who have been through the same as myself. you are so right hollydollysum sepsis is a bugger and this really made me laugh.thank's Gillian and Dave for pointing out that the small steps matter, when I think back to last year I have come on step by step and I do appriciate what realy matters in life and the little things no longer bother me.take care will chat again soon.


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