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#1 Babs

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Posted 09 March 2017 - 12:20 pm

Hello, I'm new to the forum and although I don't have a specific question I just thought sharing my story might help me get things straight in my head. At the end of January this year my husband and I set off on the holiday of a lifeltime to South Africa, to celebrate our joint 60th birthdays, mine's in about 10 weeks.

I didn't feel 100% when we set off, niggling back pain which I've had occasionally for several years but had always just seen a physio about. After about a week I became quite unwell, no appetite, back pain and then the day came when I turned yellow, head to foot! I went to a doctor who ran a series of blood tests and an ultrasound scan to see what was wrong with my liver. Within 36 hours I found out that a gallstone was completely blocking my bile duct and there were more in my gallbladder....turns out that was what the back ache was. The next day I had an ERCP, an endoscopy procedure to remove the stone. Almost immediately afterwards I felt like a new woman and we continued with our holiday.

Four days later, a couple of hours before we were due to leave for the airport for our flight home, I felt suddenly very unwell, shaking from head to foot, high temperature etc. So straight back to the hospital by ambulance, where I had blood tests and scan almost immediately and given antibiotics. I was booked in for another ERCP early the next morning and transeferred to a ward. That night my blood pressure dropped dangerously low and it didn't pick up following the procedure so I was transferred to ICU, diagnosed with septic shock,where I was for 4.5 days with a further 5 on a ward. It was a few more days before we could fly home with a nurse escort as I needed oxygen for the flight.

Have now been back home almost two weeks. Whilst I can see just how far I've come I'm starting to get frustrated at my progress. Having read other people's stories I realise I am lucky in that I haven't got any pain but I am so tired and still getting quite breathless. I imagine like many here initially I was a little high on "I've survived!" euphoria, but the last couple,of,days I've felt a little overwhelmed and tearful. I still have treatment to go through, another ERCP, to remove thenstent that was put in and any remaining stones and sludge and then I need my gallbladder out. I also need investigations for something which may or may not be sinister in my bile duct.

Thanks for reading my story and thanks for all the positive support on here.
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#2 Fahy

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Posted 10 March 2017 - 03:30 pm

Hi Babs, welcome to the forum I am new like yourself and reading through other peoples stories realy does help.I can realy relate to the feeling of euphoria that we have survived and think it is only later when it starts going through your mind just how serious sepsis can be you start to become emotional.At one point my veins started to shut down and the Dr's found it very difficult to get blood but had to, this was very painful for me and I have flash backs about it .on a positive note things become easier and you start to feel more like your self again .If you do get to a point were you are feeling down please feel free to chat to me it does help to talk to people who have experienced sepsis and also someone out side your net work of friends and family.

 

Take care and look after yourself.



#3 Babs

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Posted 10 March 2017 - 08:46 pm

Thanks for taking the time to reply Fahy. I feel less "wobbly" today. Just on a bit of a roller coaster really with having been so ill but now facing more treatment and investigations. But I've decided to be kind to myself and not expect too much, work will still be there when I'm ready to go back!

#4 Fahy

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Posted 13 March 2017 - 03:34 pm

Hi babs ,

I no exactly what you mean about a roller coaster,pleased that you are not feeling so wobbly and nice to no you are being kind to yourself, if like me its not easy when your used to putting everybody and every thing first.as for work  it will still be there and dont feel pressured to return untill you are ready.I had two phases back to work and both times ended up back in the hospital,I have not returned now since march last year and lucky that they are keeping my job open.I may never be fit to go back and if that is the case so be it.I feel very lucky to have survived and although we have cut back on a few luxuries I am still here to live my life with my wonderful Husband , friends and family what more could I ask.

 

Take care and good luck with your recovery



#5 Babs

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Posted 13 March 2017 - 05:50 pm

Hello
I've been to the hospital today and there is now a plan in place for the rest of my treatment, checking my bile ducts, removing my gallbladder etc. The scariest thing will be having a biopsy on the dodgy bit of bile duct and then waiting for the results but I need to try and put that out of my mind for now.....not sure how to do that but must try!
Thanks for the support Fahy

#6 Fahy

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Posted 18 March 2017 - 12:40 pm

Hi Babs

It is so good that the hospital as a plan in place,take one step at a time and deal with it bit by bit,its only natural to feel scared whilst waiting for a biopsy result I have had several,try to think positive if anythings wrong they can crack on and deal with it and if all is well then thats fantastic.

 

I went back to see my consultant on thursday good news that my infection markers crp have come down but another blood test as come back positive so im waiting for an appointment to see a specialist in rheumatolgy as this means I could have an inflamed bowel or an infection in my bones.its a bit daunting but hopefully a lead in to whats wrong with me as they still cant give me a diagnosis.

 

on a positive note my husband  and I are of on holiday next saturday to get some well deserved vitamin d.

 

I do hope everything goes well for you.

Take care and look after yourself.



#7 Babs

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Posted 19 March 2017 - 12:46 pm

You soak up that vitamin D, you certainly deserve it! Enjoy!




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