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I am a new member seeking advice. My husband has bladder cancer and underwent a Radical Cystectomy with Ilual Conduit in June. I am collecting him from hospital hopefully today after suffering Sepsis twice in the last 3 weeks, both times being hospitalised. What advice can anyone give to prevent this keep happening? Doctor yesterday said that due to his 're-plumbing' this is likely to keep happening. Any advice gratefully received.
I had surgery to remove the metal work from my wrist because they think i am allergic to it, what was ment to be an hour operation lasted over 4, i left hospital the next day, 2 days later i was still in alot of pain and went to the local out of hours, where i was given morphine for the pain. 3 days later i was not feeling 100% my chest felt a little tight, so my sister took me down to the walk in centre where the nurse took 1 look at me, and said i don't like the look of you, the sweat was pouring from me, she got another nurse to take a look at me, and said i needed to go to the local hospital as they both thought there was a chance that i had sepsis.
Once i got to the A&E department they took bloods from me, and hooked me up to a drip to get fluids and antibiotics into me, i was kept in overnight and then released the next day, i went to my orthopedic appointment on the friday, and they where not happy with the way i was treated, they put a plan into place that if i was not feeling well i was to go straight there and they would just treating me according to the plan in place.
I have been having weekly appointments at the othopedic apartment to check on my wrist and the wound.
I am concently tired, i can not control the sweating, i am scared that i might get another infection, and get the sepsis again, i can not believe how ill i have been, but when people ask me how i am feeling now? i can not answer, as i do not know how i feel
You've been through the mill a bit both from the surgery and the sepsis and while my experience was slightly different to yours I did have to learn to walk again due to muscle waste . It will take time before you are fully recovered but you're showing the determination required for this to happen .
When sepsis struck back in 2012 my kidney [ I only have one ] and lungs failed at our local hospital - I was flown to Paisley and within days my heart stopped and continued to stop . I was in hospital for a total of 3 months [ I developed pneumonia 4 days after being released from hospital so back I went for another 2 weeks ] .
The Physios helped me with my walking but it would be a while before I could get up our stairs so my wife made our spare room into a bedroom , even longer to get up the steps which lead up to our track - however , I had had an operation on my back in 2011 so my circumstances were slightly different .
Four weeks isn't a long time especially after what you went through , take things easy while doing your best to build up your leg muscles once more , I would say another month and you'll see a lot of improvement .
Best of luck , Katherine .
Hi Sallp, Sorry to hear you have been so poorly and are still struggling with recovery from sepsis. You may find it helpful to discuss your recovery with one of the support nurses from the UK Sepsis Trust, you can talk to them about how you are feeling and ask any questions you have. Sometimes it can be very helpful just to talk through what happened and how you are feeling with someone in confidence who understands sepsis and sepsis recovery. Healthcare professionals are not always good at looking after themselves and taking the time to talk about how they are feeling. I have provided links below to how you can contact the team and to our sepsis recovery booklet.
Sepsis Support Team
Sepsis recovery Booklet
Hi, There are so many variations of the effects of sepsis. I am finding it very difficult to come to terms with my experience and feel that I should stop thinking about it. To cut a long story short I lost 5 days completely. I am gradually remembering snippets of that time, such as nurses telling me they had to take all the blankets and put a fan on. I am medical myself which seems to make it all worse as I know how the ‘sepsis six’ is drummed into us. After 24 hours of not really knowing anything (I do not remember the journey home from America to UK) I don’t remember picking up the car at Heathrow or arriving home. My husband took me to the doctors the evening we arrived home. My temperature was 38.6, I was having rigours, my pulse was 132 the GP told me it was a UTI. Apparently I told him I thought it was pyelonephritis and was he sure (some part of me was working although I do not remember). By the next evening we saw another doctor, my temperature was 39.8 and I was immediately admitted to hospital. I had pyelonephritis, pneumonia, my liver function tests were terrible, I needed blood transfusions, I had a pancreatic stent, I have a splenic arterial aneurysm which they think has been caused by the infection. 7 months later and 3 operations I have managed to return to work very part time but I am exhausted. I feel afraid that this tiredness will not go. I miss my old life where I was super fit. My liver is still far from normal which has knock on effects such as my serum ferretin which are very high making my joints and muscles ache. But I am alive, my poor husband was told there was a good chance I wouldn’t be. I am sure my brain is a little slower but I am hoping all will return to normal. How long do you think this will be? Has anybody been through similar who would tell me there recovery experience. I keep reliving it and try to fill in the gaps. My husband tells me I must move on but I cannot quite believe it all happened.