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Amber, after reading your post and experience I totally feel for you. I am left with extreme fatigue and flashbacks too, I miss my old life and energy. I'm also confused and frustrated and don't really know if and when I'll feel better again but it's good to know we're not alone in this.
I don't really know what else to say to help you but I am sending you a virtual hug!
Firstly apologies for the delay in responding life has been busy and I am always so tired once I have gotten a chance to sit down I just fall asleep. But most importantly thank you so much everyone for the support and encouragement! I don't feel so alone in this fog of fatigue! I'm arranging to see my GP on Thursday and have printed the Sepsis Survivors booklet for him but not sure what else to do? I think I'll ask for full blood work to be carried out to rule anything else out and I had read on the forums about vitamin B12 injections which I'm not sure if they'll entertain?!
Thanks again guys I hope you are all doing okay.
Great advice and support from the forum members as always. I am sure you can see all the problems you are experiencing are very common during recovery. The poor understanding and awareness of sepsis recovery can make it feel a very lonely place to be at times. We have a helpline at the Sepsis Trust, it is manned by trained nurses who have a lot of experience caring for people with sepsis and a good knowledge and understanding of recovery. You can call and talk to them about your recovery and ask questions you may have. They can be contacted Monday - Friday 9 -4 pm by calling confidential freephone number 0808 800 0029.
Thank you Ian,
Kind of smiling here. Just got up from laying on the couch. My deadline to complete my project today, got pushed to Friday, so I thought I'd take a break knowing I had more time. Still filled with guilt (working on it, but admitting it so others who might feel the same way can get an example of how knowing about something, doesn't mean we can easily live it out (like taking it easy, when all we want to do is get back to what our lifestyles used to be like.)
I DO still have such a hard time understanding and accepting the difference between "feeling like I'm being lazy", being tired, exhaustion and fatigue. Ironically, after talking with my Physical therapist, he is really supporting my understanding about feeling fatigued vs my not trying hard enough to go longer on the treadmill.
Update: The great effects I felt from my B12 shot last week feel like they've worn out. Looking forward to Friday for another. I'll speak with my new GP to ask her about this.
Thank you again!
thanks for the update. sounds like your asking lots of questions which is good, but please dont be disappointed with yourself in any kind of way, try to bear in mind what you have been through. It took me a long time to understand the difference between tiredness . fatigue .and exhaustion. and post sepsis i was exhausted in a way i had never been before.
i can really understand your frustration. but try not to push yourself too hard at this stage if its leading to diizzyness at that point we start to risk injury and all that can mean.Really glad you put your foot down about not trying hard enough, i have met many doctors who dont seem to know much about sepsis let alone physios.
wishing you recovery.
kind regards ian