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  3. Hi Louise - an interesting question indeed- and thanks for sharing your experiences I’m no medical expert but I do know that it’s taken 10-12 years or more to get sepsis recognised as a factor in many illnesses. It was never widely recorded all those years ago and only now, the public and healthcare professions better understand the importance of sepsis in diagnosis and treatment. You may need a medical opinion based on symptoms you’ve described, to asses whether it “could have been” sepsis. If that is important to you perhaps give the UK Sepsis Trust a call and see if they can gui
  4. First of all this may seem a bizarre post. It has only recently struck me that I think I may have had sepsis almost 10 years ago but was never suspected or diagnosed of having it as far as I am aware. This occurred 3 days after I had my first child via emergency cesarean section after being in labour with prolonged rupture of membranes for 37 hours. My first symptom was intense shivering and feeling generally unwell. My temperature was raised and very quickly my respiratory rate began to rise. My heart rate was raised also but at the time was put down to the fact that I was anaemic w
  5. Hello, I wonder if anyone knows exactly what is going on in your body to cause the usual symptoms of PSS which I have, I have googled this many times and assumed from the information that it is the immune system that has to rebuild, I may be incorrect with that but if correct, no idea how that happens. Does anyone have anything to add to understand what the body is going through whilst recovering down the line. It does seem to affect all the body and new symptoms arise all the time and I sit here wondering what process the body is going through, ie is it the blood etc. Any information would
  6. Hi Amandaa - thanks for sharing your story and hope you have found some useful information here on the Forum. It's a slow recovery process for sure and symptoms can differ. If you haven't already, do talk through with your GP and explore non medicated options if that is your preference. Also, speak with a member of the support team at the UK Sepsis Trust - they are all trained nurses with experience in critical care, sepsis and sepsis recovery. give them a call on their freephone number 08088 000 029 Monday to Friday 9 – 4 pm Take care and keep in touch M
  7. Hello everyone My sepsis story began in January 2018 and ended May 2018 (3 hospital admissions). Fortunately I survived with all limbs intact. However, I have been suffering from every symptom of PSS since. Looking at the whole picture, I am getting better albeit slowly. However, the pains in my hips, back and legs can make it very difficult and painful to sleep in bed. This is relatively new (3-4 months). When I get into bed, I find it too painful to turn over or move at all, its painful on both sides and on my back, so painful I have to struggle to get out of bed which hurts more
  8. Hi, the symptoms you describe are extremely common following sepsis. Recovery following sepsis can be a slow and difficult process. Often people are surprised by how they feel and some of the problems they encounter. Recovery varies greatly form one person to the other in terms the problems experienced and the length of time to recover. Many people find it helpful to discuss their recovery with a member of our support team at the UK Sepsis Trust. The support team are all trained nurses with experience in critical care, sepsis and sepsis recovery. You can tell them what has been happenin
  9. i had sepsis shock in october, due to my kidney was blocked, i had a emergency upostomy, was in icu for 3 days, now have a urostomy bag, cant get to grips why i still feel so weak tired and pain, is this my life now, i am so thankful the hospital saved my life, but i am so affraid it will happen again, i will be 70 next year and have had lots of health problems ie bowel cancer, copd, arthritis , i manage to fight through these but this sepsis has really knocked me off my feet, how long will i feel like this, can anyone advise, thanks
  10. This is scary close to so much I had and am still dealing with. Right down to the nerve damage in the foot which is a motherfucker!
  11. Hi Scott thats alot to deal with, but with patience and time your still here .wishing you the best. kind regards red
  12. Hi Scott - a massive blow indeed - and you made it!! Seems the sequence of those events matched my own - and many others I'm sure Welcome to the other side and thanks for sharing here on the Forum Step by step ... M
  13. Good on you Scott. Wishing you well moving forward. So many great songs with 'Keep on keeping on'. My favourite is Primal Scream's Country Girl
  14. In addition to aching all the time I have constant rage. My breathing is still sketchy as sepsis wore a hole in my lung collapsing it, my equilibrium is shot and everything seems like a massive effort. Except for cooking which I love to do and that chills me out. My wife is utterly remarkable and her support has been invaluable to me. (No booze for me either, but I quit that in May 2018).
  15. My name’s Scott. On June 1st 2019 I was admitted to hospital with breathing difficulties. This was in fact influenza which developed into double pneumonia. Sepsis wasn’t far behind. It tore a hole in my lung the size of a shotgun wound. It shut down my kidneys, liver and stomach. I had a higher percentage chance of death than survival. But survive I did. I went to sleep June 1st and came back to the land of the living in July on the back end of a month long coma. I still have Post Sepsis Syndrome and have a long road yet to go. But I’m still here. そして、私は死の殺人者です...
  16. Hi, I am a university Product Design Student at Loughborough University and am doing a final year project on monitoring infections to prevent the onset of sepsis. And would be amazing if could fill out my survey so could understand some insight into infection prevention and any issues anyone faces. Should only take 5 minutes to complete. https://docs.google.com/forms/d/e/1FAIpQLSfJJC1uSEKyhf79itF0FcShaOjs3XdWh9KatWPuGKD41urIbA/viewform?usp=sf_link Thanks Jack
  17. Joe, I get the tired bit myself and many others would call it exhaustion. Like Red said, you've got to listen to your body and take time out to rest when needed. My taste was all over the place. Everything was salty and I could only stomach bland foods. Enjoyed a curry before but found even the mild ones too hot. I've always enjoyed a pint but the taste post sepsis was awful. The only drink I cared for was lager and lime, where as before I was a real ale man. Now - love my curries, always up for a pint (Blonde, Golden) and now eating out which I avoided for being wasteful. Wo
  18. Wow, thanks everyone for replying to my post so fast. They are really nice comforting words and I have found by sharing my story, it has lifted abit of weight off from my mind. Seems incredibly strange reading my own story back. Looking back at the year there has been a lot of stress. I have realised that I have kept it bottled up from friends and family because I have felt silly to express and go on about myself. I really appreciate you guys taking the time to write back and it's been nice to relate with others in the same/ similar position- reading other people's experiances and
  19. Hi Joe i hope you may feel some reassurance from the replies you have already received. like you i worked in a physically demanding enviroment and to be honest i underestimated sepsis not surprising really as i knew nothing about it. Its taken me along time and with a great deal of resistance on my part to understand and learn about recovery and what that means for me.push myself too hard and i pay the price.recovery will come but can be painfully slow and with setbacks. but at first it can be important to keep things simple.read as much as you are able both on and off this forum.be good to y
  20. Hi Joe Sorry to hear you are having such a difficult time, all of the things you mention in your post are very common experiences of sepsis survivors. Sepsis recovery is poorly understood and many of the problems experienced are unexpected and hidden from those around you. It can be helpful just to talk things through with some one who understand; the sepsis support team at the UK Sepsis Trust consists of trained nurses who have a lot of experience of sepsis and the many problems that can be experienced during recovery. You can contact them by calling 08088000029 Monday to Friday 9 -3
  21. My best wishes on your journey Joe. From what you write you are doing well mentally and this will see you through the tough times you discuss. I wasn't as positive early doors and the comments of 'you're lucky to be alive' etc fell on deaf and angry ears - I didn't feel lucky. Now much later I appreciate I am a lucky one and proud to be a member of the survivors group. Keep talking and your idea of fundraising will help you just as much as the charities. Work wise I wasn't the same but that doesn't have to be a negative. For example I was more empathetic to my colleague
  22. Hello everyone. Just wanted to share my story. I'm a bricklayer. 22 years old. Very healthy and active. Before all of this happened, I had no idea what sepsis was and wasn't aware of the impact it would have on my life. I went in for a routine ACL/mcl knee operation. The first one was fine which was in late January 2019. The second operation was on March 11th. I woke up from the operation instantly unwell with a lot stomach/back pain. I was transferred to Brighton during the early hours and it was descovered that I had sepsis, pancreaitus and pneumonia. I was in hospital for 2
  23. Hello everyone. Just wanted to share my story. I'm a bricklayer. 22 years old. Very healthy and active. Before all of this happened, I had no idea what sepsis was and wasn't aware of the impact it would have on my life. I went in for a routine ACL/mcl knee operation. The first one was fine which was in late January 2019. The second operation was on March 11th. I woke up from the operation instantly unwell with a lot stomach/back pain. I was transferred to Brighton during the early hours and it was descovered that I had sepsis, pancreaitus and pneumonia. I was in hospital for 2
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