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  3. Amber, after reading your post and experience I totally feel for you. I am left with extreme fatigue and flashbacks too, I miss my old life and energy. I'm also confused and frustrated and don't really know if and when I'll feel better again but it's good to know we're not alone in this. I don't really know what else to say to help you but I am sending you a virtual hug! Natalie
  4. Firstly apologies for the delay in responding life has been busy and I am always so tired once I have gotten a chance to sit down I just fall asleep. But most importantly thank you so much everyone for the support and encouragement! I don't feel so alone in this fog of fatigue! I'm arranging to see my GP on Thursday and have printed the Sepsis Survivors booklet for him but not sure what else to do? I think I'll ask for full blood work to be carried out to rule anything else out and I had read on the forums about vitamin B12 injections which I'm not sure if they'll entertain?! Thanks again guys I hope you are all doing okay. Natalie xx
  5. Hi Natalie Great advice and support from the forum members as always. I am sure you can see all the problems you are experiencing are very common during recovery. The poor understanding and awareness of sepsis recovery can make it feel a very lonely place to be at times. We have a helpline at the Sepsis Trust, it is manned by trained nurses who have a lot of experience caring for people with sepsis and a good knowledge and understanding of recovery. You can call and talk to them about your recovery and ask questions you may have. They can be contacted Monday - Friday 9 -4 pm by calling confidential freephone number 0808 800 0029. Sepsis Helpline
  6. Thank you Ian, Kind of smiling here. Just got up from laying on the couch. My deadline to complete my project today, got pushed to Friday, so I thought I'd take a break knowing I had more time. Still filled with guilt (working on it, but admitting it so others who might feel the same way can get an example of how knowing about something, doesn't mean we can easily live it out (like taking it easy, when all we want to do is get back to what our lifestyles used to be like.) I DO still have such a hard time understanding and accepting the difference between "feeling like I'm being lazy", being tired, exhaustion and fatigue. Ironically, after talking with my Physical therapist, he is really supporting my understanding about feeling fatigued vs my not trying hard enough to go longer on the treadmill. Update: The great effects I felt from my B12 shot last week feel like they've worn out. Looking forward to Friday for another. I'll speak with my new GP to ask her about this. Thank you again! Richard
  7. Hi Richard thanks for the update. sounds like your asking lots of questions which is good, but please dont be disappointed with yourself in any kind of way, try to bear in mind what you have been through. It took me a long time to understand the difference between tiredness . fatigue .and exhaustion. and post sepsis i was exhausted in a way i had never been before. i can really understand your frustration. but try not to push yourself too hard at this stage if its leading to diizzyness at that point we start to risk injury and all that can mean.Really glad you put your foot down about not trying hard enough, i have met many doctors who dont seem to know much about sepsis let alone physios. wishing you recovery. kind regards ian
  8. Hi Natalie and welcome to the forum. firstly you are certainly not any kind of drama queen , i have read from other members of here who contracted sepsis post childbirth, it might be worth reading arround when you feel up to it. in the meantime you might find it helpfull to speak to one of the sepsis nurses 0808 800 0029. apart from this forum and the members on it they were the only source of information on sepsis and recovery that we could find at the time. my sepsis was post surgical and i have had to learn the hard way to manage my expectations regarding recovery. in the beginning i pushed myself to hard and then paid the price. knocking myself out for a week or more only to have to start again. i know it may not feel like it right now but you are doing really well. you both survived ,and thats wonderful news. recovery takes time and there will be setbacks along the way. but there is help available .you are not alone in this anymore. kind regards ian
  9. My Pleasure... I remember (after reading a lot of posts here), learning that I wasn't the only one. Reading more, I began to learn that I was doing well compared to others. Then what I learned was not to compare my recovery to others! That became very important. We are all different, different reasons for contracting Sepsis and different reactions to it. I had a long work day the other day with very little rest... The result were symptoms being more pronounced and needing LOTS of rest... (I do have a hard time listening to my body and resting... (Impatience is a hard thing to set aside when you're remembering how you used to feel before this and just want to press a magic button to "reset" to normal.) I do hope you're reading as many threads here as possible. LOTS of great information from people with a lot more experience than I. I'd also suggest printing some of the downloads from this site to take with you to your GP. I did and she very enthusiastically accepted them to read. Wishing you well, Richard
  10. Thank you so much for your response Richard it makes me feel like I'm not alone and not going crazy which in itself is helpful. It sounds like you've had a terrible time and are still experiencing difficulties which I hope get better for you with time. I guess this whole thing does take time and we will have to accept that. Thank you again for your kind response I really appreciate you taking the time to read my story and it reassures me a little. I'm going to speak to my GP and go armed with as much information as I can on PSS. Natalie
  11. Hi Natalie, I need to keep this reply short as I'm just taking a couple of minutes off waiting for glue to dry. If you read my post just above yours (5 months since kidney surgery), you'll see that you are not alone. I TOTALLY thought I was being a drama queen, that my fatigue was me being lazy and that I had turned into a hypochondriac. My GP knew of sepsis, but not enough to address it and denied therapies I felt were worth a try. I ended up switching doctors. First visit was better, but she did not have in depth knowledge of what we are going through. She at least listened, ordered blood work that other doctors had not and received the sepsis document downloaded from here as homework to read before my next visit this Friday. I pushed myself on the treadmill this weekend (only 4 minutes before I had to stop from pain.). I've felt major fatigued since then... Read the posts here and take the advice from others with experience over longer periods than I regarding patience, giving yourself a break and (I think, most importantly), grace to recover. Wishing you the best, Richard
  12. Update: I went to the new GP. Feeling better with her. She knows a "little" about Sepsis, but was eager to receive the handouts from here to study and learn more. She agreed to the B12 shots and another to help with weight loss (Considering my inability to exercise)> Was shocked at how much better I felt within 6 hrs of the shots! I thought it might be a placebo thing (I want it to work, therefore, my brain tells me it is working), Either way, I'll take it (I know the mind is a powerful thing and can (to some degree) heal ourselves.) The next day, still felt a little better, but several days later, I'm feeling the same as before. Going in on Friday for another B12 shot. She asked me a lot of questions no one else had before (This after handing her all my test results and blood work results). She ordered more blood work for things no one else had investigated, and I'm happy for that. I've been pushing myself doing exercise and yesterday, I sat up after doing some strenuous stretching and got REALLY dizzy, the room was spinning, to the point that I got scared. I laid down and felt better, but I sat up several times since and still had some dizzy feelings. I talked with my physical therapist about how very disappointed/frustrated I was about his not understanding Sepsis and accusing me of not trying hard enough. We settled that issue (I really had to set my foot down hard and fight for my position.). He had me try something when I walked: When my back pain came on, to lean over with my hands on my knees and rest for one minute and see if I could walk again with out pain. If the pain dissipated, there was a good chance my pain might be coming from a bone spur. Well, I tried, but so far, I really can't tell. I cam back here reading more, searching for more key words like "Fatigue". I had associated my using and identifying with the word "Fatigue" as being lazy... After reading more here this morning, I'm starting to accept that my experiencing fatigue is part of the post sepsis condition. I will tell him today and see what happens. I'll report back when I learn about the new lab results (My feeling about the new blood work, is positive, searching for other "possibilities" to rule out or look into. Still frustrated... Counting the time since my last surgery it's been 3 months and almost 4 weeks. Based on my readings here, this is considered a very short time period, so that's tempering my frustration. My wife accepts the fatigue and points out all that I've accomplished since my surgery. Since the beginning of this year, I've completed 4 new prototype projects and have earned almost the same as I did within a two month period as before this whole ordeal. Not a great way of measuring "recovery", but I can identify with it and seeing this is helping me lower my frustration levels. I have a deadline this coming Friday and it's going to be tight, but I'm promising myself to pace myself no matter the stress level to meet this deadline. I recently watched a documentary on Netflix (The Chef's Table), with an episode on the Chef Sean Brock... One of our favorite Chefs... We saw a video on him a year ago and all I could think of was "I want to be like him!" Well, as it turned out, I WAS like him! I LOVE what I do for a living and always joked about what do you do for fun/relaxation when your work derives me so much "pleasure"... Well, he came really near death working so much ("Because he "LOVED" what he did!). It hit home so hard!!! I saw myself like that and coming so near death (still hard to accept), and fell into tears for a few hours.... Still taking long breaths and thinking carefully about how hard I push myself... Thanks again for being here... I'm going to read a little more this morning and then get back to work, being grateful that I "can". Best, Richard
  13. Hi, I've come across this forum so I am hoping someone here can give me some advice or just listen as I feel like I am losing my mind?! I contracted Sepsis during the birth of my first baby in September 2017. I was Group B Strep positive and knew this at the time however my local hospital did not act on this and I was left 24+ hours with leaking waters not progressing to labour. I was found in my hospital bed the morning following my admission semi-conscious with tachycardia, high temperature, etc and it was determined I had Sepsis. I was treated very quickly IV antibiotics, fluids, oxygen, had numerous blood tests and swabs taken and was looked after by a team of doctors and midwives. I thankfully improved a little and was able to give birth however my daughter was born with GBS infection and Sepsis. Thankfully she made a full recovery with no lasting effects. We spent a week in hospital on IV antibiotics and I continued antibiotic treatment at home for a further week. Healthcare staff did not really tell me what was wrong with me or what was going on and I had to learn myself from reading my notes on release from hospital. It scared the life out of me and feel there was negligence which I'm currently addressing with my local NHS Trust. I somehow got through the first 6 months of my daughter being born I completely focused on her and tried to forget about our ordeal as I didn't want to ruin that precious time. Of course it hit me 6 months later I was a complete wreck needed counselling and was diagnosed with PTSD and anxiety as a result of what we'd been through. Since the Sepsis I have been so tired and lethargic, dizzy/light headed, headaches, feeling generally run down, brittle hair and nails, dry itchy skin, random joint and muscle pains. I have PTSD and anxiety with flashbacks, nightmares and insomnia. I never suffered with my mental health before. I was an extremely happy positive person with so much to look forward to and I understand I still do and count myself very lucky that things did not turn out worse. I don't feel depressed however I know I am suffering from anxiety over silly things. I am worried about going to my GP about this because I don't feel they will understand. I've had bloods taken and my blood pressure monitored to rule out any issues that may be causing some of my symptoms. I know tiredness comes with being a new mother but she is now nearly 18 months old is a very settled child and has slept 12 hours through the night since she was 7 weeks. I came across this website whilst google searching and feel I may be suffering from Post Sepsis Syndrome? I feel like no one will understand when I try to explain how I'm feeling and I don't want to come across as a drama queen. I didn't spend any time in ICU. I was in the right place when I contracted Sepsis and I was treated very quickly so I'm not sure if this rules me out for PSS? If you've managed to read this thank you! Natalie
  14. Ian, Thank you so much for your response. I came here not wanting to hear" it will take time... just rest"... I'm smiling hearing you share this as, something I still haven't grasped, is that it really is relatively early regarding recovery... (Hard to accept as with most of my life including designing prototypes, the thing most people respond with is: "You accomplished THAT in how long?!?!?! referring to projects that would normally take others, much longer... My personality, skill sets, intelligence ext had always lent myself to getting a lot done fast... I am realizing that I am applying these same expectations to recovering from Sepsis... (Sigh... and quietly laughing at myself.) I think the biggest impact I received from your response was that I am "still in my early days"... That sunk in... Thank you! Part of my frustration is dealing with my primary doctor, who although knows "about" Sepsis, is not really equipped or willing to help as much as I ask... (Wouldn't try vitamin B12 shots because my B12 results were right in the middle.) She wouldn't consider the circumstances or symptoms. My endocrinologist is very knowledgeable and wants to help but can't because of office protocol... she told me to seek help from my previously mentioned primary care doctor... My new physical therapist is a "sports-related" physical therapist, very masculine and tells me to just suck it up and points out that I'm not trying (after going to tears after 6 minutes on a treadmill because of the pain). I have an appointment tomorrow morning with a new primary care doctor at a new clinic (leaning more towards holistic medicine who understands Sepsis and is willing to follow my lengthy research to try B12... She also suggested rapid/aggressive weight loss injections as she sees my physical limitations hampering my exercising to loose weight and the extra weight I've gained since September getting in the way of my physical therapy trying to reduce pain. (Sure sounds like a quite a circular, never ending circle of dead ends... I'm praying that tomorrow will be a new beginning... even if it doesn't work, at least I feel mentally more optimistic about trying something different. I will most definitely report back in with results from my efforts (B12 etc...). Hopefully the results will be positive and may offer hope to others here... Even if it doesn't work, it's still something to share along with everyone is different and what might not have worked for me, might for others. Again Ian, Thank you for sharing! You: " at the risk of repeating what you already know...give yourself the time that you need...be good to yourself....rest when you need to.....take whatever help is available.just one step at a time." This struck a positive and encouraging chord and put a smile on my face. Best, Richard
  15. https://www.bbc.co.uk/news/health-47279072
  16. Hello Richard, welcome to forum. your current symptoms are something that i and many others im sure can identify with and sound quite normal considering what you have been through.i also arrived at sepsis via what was thought to be a kidney infection post surgical .its taken me along time and with a great deal of resistance on my part to come to terms with sepsis and what that actually means for me as far as recovery/timescale is concerned bearing in mind that no two patients or recoverys are exactly the same i have read as much as i can both on and off this forum and would encourage anyone to do the same. this forum and the help of other members have helped me to manage my expectations in that regard. recovery will come although this can be painfully slow at times, you have been through so much over the past few months so in that sense its still early days, we had some great support from the sepsis nurses on here i know you cant phone them but im sure you could email them, they were very helpful to me and my wife.at the risk of repeating what you already know...give yourself the time that you need...be good to yourself....rest when you need to.....take whatever help is available.just one step at a time. wishing you recovery. kind regards ian
  17. I had a burst colon and severe sepsis poisoning THE HOSPITAL ONLY GAVE ME 10% of surviving the 5 hour operation to remove all my Colon and give me a stoma bag. I was a survivor but my kidneys needed flushing out and my blood needed replacing all my body was infected, when I came around from the op I was on life support for 7 days then intensive care for 3 months as I could not speak or walk I was given therapy and loads of different medicine. It was a terrible time but within 3 weeks of the operation I could speak again and after 10 weeks of therapy I can walk with a stick quite reasonably well. I am home now but need lots of support from my wife the after support from the hospital is non existing. I am certain your husband will get better in time they tell me it will take up to 2 years for all my body to recover but at this moment I am suffering with post sepsis shock disorder which includes bouts of severe depression and all sorts of body malfunction, My wife went through what you appear to be getting but your husband is alive and it will take a while for him to begin showing signs of recovery.
  18. Hello all. Fist off, THANK YOU for being here, to the Trust and to the members who have contributed. Not really specific as to why I finally joined (been reading here for months), but at this point, this site seems to be the one place I feel comfortable/reassured, coming to... Thank you again for that! (Apologies in advance for what I fear might be a lengthy post. I hope to gain support and advice by joining and posting, but most importantly, I want to share back to those that (like me), are visiting here without registering and (like me), wondering what is going on.) Background: 65yrs old, used to be fairly active, emergency Kidney surgery mid September (It's now mid February), for several kidney stones in both kidneys (one was almost 1" long!). At time of surgery, my kidney function had dropped to 15%. Hospital stay for one week where many blood cultures and other procedures were done to isolate infection source.IV antibiotics. Last hospital stay (November 1st), was to have the other kidney sonic blasted to dissolve remaining stones. Followup with Urologist last month confirmed I was kidney stone free. When I asked him about my severe lower back pain, I was told it was due to lack of exercise. I agreed, since I had gained a lot of weight just laying down all day. Note: Reviewing my history of symptoms, I now realize that my Sepsis symptoms started a year prior to surgery. I was experiencing increasing lower back pain, but nothing radiating to my sides to indicate that it was my kidneys as well as fatigue and memory loss. I thought it was just due to working too long, too hard formany hours a day without exercise. In September, my wife found me laying on the floor unable to get up. Against my wishes, she called 911 and had me rushed via ambulance to the hospital. (I thank GOD for her, as she truly saved my life.) Several weeks after surgery, experiencing many Sepsis related symptoms, she printed out the material from this site. (She found this site much earlier as part of her way of taking care of me but was apprehensive to share it with me for fear my depression might get worse.) In reality, reading that so many here were experiencing the same symptoms, I started feeling better about what I was experiencing realizing that I was not along, or going crazy, of being "lazy" for wanting to remain laying down all day while my wife left for work each day. (BTW: My wonderful wife has been the most supportive person I have ever met and I count my lucky stars to be with her!!!) I still come back here to read... even if it's a post I've already read... just as a reminder. My GP has no real knowledge of Sepsis. My endocrinologist (T2 diabetes), is knowledgeable, but I still don't feel like I'm getting as much help as I'd like. I'm seeing a physical therapist for my back pain but he has no knowledge of it and just tells me to stop being lazy and exercise. I'm now searching for another GP for help. QUESTION: Does anyone here have any experience with Vitamin B12? I just started taking oral B complex vitamins yesterday after reading a LOT about it. Hoping for more energy, better cognitive /nerve and pain free experiences. CURRENT SYMPTOMS: MAJOR Exhaustion/Fatigue! Not just 'wanting" to go lay down, but after sitting up and performing minor tasks I HAVE to go lay down and rest. When I do lay down, I'm unaware that I just "pass out" and wake up a few hours later, clueless as to "what happened". Memory loss: short and long term as well as inability to speak the way I used to. Like others, I'll start talking and after the first syllable or word, I experience a "train wreck" in my mind. My thoughts and sentences are there and ready to come out and communicate but I find that I have to think a lot before I speak and my vocabulary has dwindled down to nothing compared to what I used to have. Sometimes I'll begin to speak and after the first syllable, I'll complete a "new, never before heard of" word and just break down in tears. If it's with my wife, I can sometimes laugh at myself while my wife looks at me with reassuring eyes and reassures me that I will get better. Pain! Leg, arms and lower back. My "personal best" for walking is now 6 MINUTES on a treadmill (Once!), AFTER starting physical therapy. I can stand for maybe a minute or two at best. My ability to sit up has improved to maybe a few hours. Hair Loss and dry scalp. At first i though maybe I wasn't washing my hair enough as I'd scratch my dry scalp and pull out what I though were "white heads/pimples". I started looking closely and realized they were hair follicles with hair attached. Breathlessness... Not being out of breath as if I have been running, but just sitting up from laying down, going to the bathroom, making my way back to bed. (I know I'm experiencing more symptoms , but I "can't remember at the moment") I've read here and have been told by others, that I just have to 'go with the flow" and rest... Reassuring and I try hard to follow what my body is trying to tell me, but having a hard time following this advice... I just want to get better! Researching all that I can (hence my question bout B12... BTW: I asked my GP for b12 shots. She had me tested and my results were right in the middle, so she wouldn't prescribe them for me and why I'm now seeking a new Sepsis knowledgeable GP.) I've read just about EVERY thread here, sometimes repeatedly as a reminder of what I'm really dealing with... Also reassuring! Thank you again! I can say that I have improved over the past few months, but it just doesn't seem enough. I used to be a firefighter (helicopter rescue), and VERY familiar with trauma associated Septic Shock, but before my experience, never knew or understood Sepsis. I now understand, especially realizing that 85% of my urinary toxins were being pumped back into my blood system for a very long time. I just have a hard time embracing and accepting it... It's not like dealing with a tangible trauma. I do know that I'm VERY lucky to be alive and very grateful for it. I do see my improvement and I'm very grateful for that too. I feel guilty (especially after reading other member's experiences that are far worse then mine), that I'm still not satisfied and want to feel better. I guess that's it for now. Thank you so much for reading and THANK YOU SO MUCH for your posts here. THEY HAVE HELPED ME TREMENDOUSLY!!! Best, Richard
  19. Morning Charley H20 I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter. I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery. Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need. Sepsis UK support phoneline are invaluable, please when you can ring. We too are here as someone will always understand what you feel. There is no right or wrong way to feel. Just do what you are doing. THE BEST YOU POSSIBLY CAN. Thank you for finding us. Take care of yourself. Many blessings to you all. Best wishes Isabel
  20. Dear Charlie H20 I can only imagine what a horrible and difficult time this must be for you, and of course your Husband. Just hold on fast to Hope and Faith (whatever that may be for you). Six years ago today, I went into hospital to have my gall bladder removed, and - well, things went very wrong and after two days I ended up with profound Septic Shock. I was transferred to another hospital, and owe my presence here now to the skill and care of the surgeons and staff there. I too was on dialysis for a while. So my expected stay of one night turned into 16 months, and it was a long journey. Now, six years on. I don't have quite the strength and energy that I once did, but I can and do live quite a good life, all things considered. I was able to return to work (albeit part-time) and driving, both of which were big milestones. The most significant thing for me throughout that "battle" was the constant love and support of my beloved Partner and my two daughters - which so helped me hold myself together. I do hope that your Husband progresses well, and the clouds start clearing for both of you very soon. Very best wishes.
  21. Hello, I'm sorry to hear your husband is unwell. This is understandably a very difficult time for you. It may be helpful to speak with the support nurses at The UK Sepsis Trust. We are all qualified nurses with vast amount of experience in Intensive Care looking after patients with sepsis and advising people in there recovery. We are available via our freephone support number, 0808 800 0029, Mon-Fri, 9-4. Or email support@sepsistrust.org Its important to reach out to those close to you at this time. To support you and your daughter. I would also advise you to get daily updates from the Intensive Care team. Communication is vital and if you have any questions, write them down. Brian is an example that many people do survive this so hope is important. It is also not uncommon for sepsis to affect the kidneys so they require support in the form of dialysis. Please don't hesitate to get in touch. Wishing you and your husband well, Oliver Jones - Support Nurse UK Sepsis Trust
  22. CharleyH2O, I am replying as a survivor now enjoying life after 5 years when it all seemed lost - I’m afraid it can take a while! Please read this as a message of hope and possibility. I had frequent admissions with liver infections needing drained each time, before my gall bladder was removed, and this gave me extreme Sepsis. I was in ICU for 7 weeks on life support and dialysis, my son came home from Australia as he was told I would not make it. Recovery took a while as I learned to walk again and I was treated for severe depression during this time. I developed an incurable blood disorder when I was better, and this meant regular draining of my spleen and the treatment gave me diabetes requiring frequent insulin injections each day. I am now healed, and deeply grateful for so much - the NHS care, both physical and mental, was extraordinary. And not least, the devotion of my wife and family was unstinting. I have welcomed my second grandson now, and look forward to each day. This has taken time, and many ups and downs, but the joy of restored life is so precious. I wish you blessing and strength through this time, and look forward your better news. Love and blessing. Brian W.
  23. Hi everyone, I don't even know where to begin but I'm just seeking any assurance or positivity. My husband's bowel leaked into his abdomen causing infection and of course, sepsis. He had his first surgery for removal on Saturday and has been asleep since. On Monday they opened up again to flush out some more of the infection and saw his heart rate and temperature lower a little. Today, Tuesday, his temperature has gone up slightly and he's on dialysis as his kidneys aren't functioning well. I'm just seeking any hope really. My world is falling apart and I'm trying to keep strong for our daughter but I don't know how to cope. Thanks for reading x
  24. Hi! First of all I just want to give you a big hug! We are all on an unexpected journey, that we didn't ask to go on and yes, our lives are now very different. I had Sepsis in July 2015 and what you have written was basically me too, expect I am a bit older (53 then and 56 now). I was competing in triathlons, running half marathons and had always lived a 'healthy' life. The consultant told me that being so fit is how I managed to survive the Sepsis. I wrote a blog for a while called 'Believe!' (on wordpress) and that summarised some of my ups and downs, including some of the things I did to help myself 'get back'. Roll forward to December 2018 and am I back to what I was? No, is the answer, but I have gradually (VERY gradually!!) come to the belief that I was given a lesson (the biggest one of my life) and I now completely appreciate the life I have. I am living my 'new normal'. I have had to take early retirement from my post as head teacher of a rural primary school, because I do not have the physical or mental stamina for the job anymore. However, I am currently setting up a new business called 'AndBreathe...'. I cannot work full time, but this business is focussed on wellbeing, sharing the tools I have used, and still use, to get me through the ongoing challenges that I still face. I might not be running any more half marathons but I can run (not so fast or intensely, but I can run) and I can go out on my bike (not time trialling but a good cycle enjoying the countryside) and I am back loving a swim now and again. The main thing I am left with is the fatigue, which is mostly manageable now. The only thing I haven't completely figured out is that if I have a rush of adrenalin (excitement, stress, too much going on), my body crashes big time after the adrenalin wears off. I haven't figure out a way of easing that reaction. There is a group on FB called Sepsis Warriors. I have found them to be a very supportive group. I tried a couple of other groups but found then to be too depressing. This is absolutely NOT an advert, but I am now an EFT practitioner and would be happy to Tap with you, if you would like? Have a look at my website www.andbreathe123.com The most important piece of advice is to be kind to yourself. Don't beat yourself up. You WILL find that not everyone understands and you will definitely find who your true friends are. Maybe that isn't such a bad thing?! Take your time and focus on the small steps. I know how hard that it but cherish the small things. Best wishes Gillian x
  25. Hi Amber - thanks for sharing your experiences - horrendous as they are I haven't suffered PSS myself but there are many posts on here from those in similar circumstances. Here's just one thread - see here for some more information As a healthcare professional you will know that life changing events can have a massive impact on one's physical and mental capacity to "manage" the situation - and professional support and advice can help those in need. The Forum is a great place to understand that you are not alone and the Trust provide a free helpline to discuss on a 1 to 1 basis with one of their trained nurses. Give them a call on 0808 800 0029 Post back here any time I'm sure you've had a massive impact on many peoples lives in your career and seen positive outcomes from critical situations. All is not lost - just get the support you need and take each day as it's given Take care and sending you support and wishes M
  26. Dear all I am new to this forum having discovered it after trying to research the "side effects" of sepsis. Back in September I had an infected gallbladder. I had it removed and instead of being just day case surgery I was admitted to hospital for four days and treated for sepsis. In the days leading up to it I felt very unwell with rigors, fever, mottled skin and honestly could have written out a will, I felt so bad. I've never felt so unwell and frightened in my life. I'm a nurse myself, but I continue to feel emotionally and physically drained by the whole experience. Psychologically I am still having "flashbacks" to the experience and worried about going back to working in a clinical environment and that I wont be able to take care of people properly, whilst I'm still trying to deal with all this. I'm terrified of becoming unwell again. Physically, I am managing to sleep but still wake up exhausted, have not yet returned to work and not doing all the usual things I used to love - swimming, being out all the time, shopping, even going to work in a job I used to love. I've withdrawn from friends and social gatherings because I tire so easily which is making me feel even more depressed. I've been to the GP for repeat blood tests and scans which have all come back normal. I guess my question is could all this be related to "post sepsis syndrome?". I'm only 36 and to be so incapacitated from normal life is sending me crazy, I used to be non-stop on the go. I wasn't in intensive care or anything, just treated on the ward and I just wonder if I am going crazy and if it's all in my head or if this is something that happens after sepsis? I'm so frustrated and have had a few panic attacks (which I'd never ever had before). I've been seeing a counsellor who has been amazing and trying things like meditation but I just need to know is there an end to it and does life ever get back to normal?
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