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  1. 1 point
    Katherine H

    Newbie looking for advice

    I've just discovered this forum after scrolling through Google looking for answers. On the 20th January I was admitted to hospital severely ill with a burst appendix and ruptured bowel. As a result I ended up with sepsis and pneumonia and induced into a coma for 10 days to recover after surgery. My kidneys began to fail and my immune system would not work properly. Just a couple of days after I woke up, I was rushed back into surgery when the sepsis had returned. I was then subjected to a further 2 operations to close my stomach and ensure everything was healing correctly. I spent a total of 7 weeks in hospital, including 5 weeks in Critical Care. As a result, I have lost a lot of muscle mass and currently going through physio to build up my strength and allow me to walk independently again. I have nerve damage in my foot, and my breathing still isn't 100% as my lung collapsed following removal of the ventilator at one point. I have been out of hospital for 4 weeks now and still very weak, walking short distances on crutches but getting tired easily, I'm constantly exhausted, in pain, spending most of the days asleep and finding that I get upset very easily. I joined this forum in the hope that someone has been through a similar experience and would be able to give me some idea of recovery times? And whether a full recovery should be expected? Is how I'm feeling normal? Thank you
  2. 1 point
    red squirrel

    Keeping on keeping on.

    Hi Scott thats alot to deal with, but with patience and time your still here .wishing you the best. kind regards red
  3. 1 point
    Mark Sollis

    Keeping on keeping on.

    Hi Scott - a massive blow indeed - and you made it!! Seems the sequence of those events matched my own - and many others I'm sure Welcome to the other side and thanks for sharing here on the Forum Step by step ... M
  4. 1 point
    MarkDUK

    Keeping on keeping on.

    Good on you Scott. Wishing you well moving forward. So many great songs with 'Keep on keeping on'. My favourite is Primal Scream's Country Girl
  5. 1 point
    Joe

    few months on...

    Hello everyone. Just wanted to share my story. I'm a bricklayer. 22 years old. Very healthy and active. Before all of this happened, I had no idea what sepsis was and wasn't aware of the impact it would have on my life. I went in for a routine ACL/mcl knee operation. The first one was fine which was in late January 2019. The second operation was on March 11th. I woke up from the operation instantly unwell with a lot stomach/back pain. I was transferred to Brighton during the early hours and it was descovered that I had sepsis, pancreaitus and pneumonia. I was in hospital for 2 1/2 weeks which was the worst time of my life. My whole family at one stage came to visit late at night out of hours and everyone was crying. I really felt helpless as I kind of gathered the dangers of sepsis and how my life could have come to an end. ( I was heavily drugged up throughout my time there). I thought I recovered to an extent, then a few months later I suffered a pancreatitis attack and caused me to be in hospital for another week. This attack has taken its toll on me. They don't know the cause, I don't drink, smoke and I eat a very low fat diet. The second time has really effected me it's almost been a year from the very start. I'm a bricklayer/builder and I have really lost my confidence to do my job that I use to love. I always seem to be tired and I have had to do rehabilitation for my knee and learn to walk again on top of everything that went on. I have found it exstreamly difficult to get back to things. I really feel like a different person and I never thought something like this would happen to me. I'm trying to get back to work but it's really hard at the moment, mentally and physically. Most Employers don't understand that I'm slower at my job and I'm finding my way again. I might have to do something else. I really feel for people who suffer from this and I really do feel lucky to be alive. I do hope to do a charity event for sepsis when I feel a bit better. Thanks for reading.
  6. 1 point
    Hi, I am a university Product Design Student at Loughborough University and am doing a final year project on monitoring infections to prevent the onset of sepsis. And would be amazing if could fill out my survey so could understand some insight into infection prevention and any issues anyone faces. Should only take 5 minutes to complete. https://docs.google.com/forms/d/e/1FAIpQLSfJJC1uSEKyhf79itF0FcShaOjs3XdWh9KatWPuGKD41urIbA/viewform?usp=sf_link Thanks Jack
  7. 1 point
    Skyehammer

    Newbie looking for advice

    You've been through the mill a bit both from the surgery and the sepsis and while my experience was slightly different to yours I did have to learn to walk again due to muscle waste . It will take time before you are fully recovered but you're showing the determination required for this to happen . When sepsis struck back in 2012 my kidney [ I only have one ] and lungs failed at our local hospital - I was flown to Paisley and within days my heart stopped and continued to stop . I was in hospital for a total of 3 months [ I developed pneumonia 4 days after being released from hospital so back I went for another 2 weeks ] . The Physios helped me with my walking but it would be a while before I could get up our stairs so my wife made our spare room into a bedroom , even longer to get up the steps which lead up to our track - however , I had had an operation on my back in 2011 so my circumstances were slightly different . Four weeks isn't a long time especially after what you went through , take things easy while doing your best to build up your leg muscles once more , I would say another month and you'll see a lot of improvement . Best of luck , Katherine .
  8. 1 point
    Holz

    Survivor struggling

    Hi all, I survived Sepsis in December 2012 on my birthday of all things! It's approaching 4 1/4 years now, and I was directed here and to support groups by the volunteer co-ordinater as she advised I need to process emotional trauma and get my head in the right place to volunteer so I don't break down telling my story. This is what happened when I shared my story and watched it played back as part of my uni assessment in playback theatre, where audience members volunteer to share their story in front of an audience. I shared it at the very end after another audience member shared a difficult story wanting to raise awareness, proving that not all performance sharings were happy/funny/joyful. I couldn't write my essay, I was a mess and need to try and process some of my feelings on here of emotional pain and upset, of confusion, bewilderment and loneliness with it all. Thanks all for reading, Holly x
  9. 1 point
    Amber2016

    Any advice gratefully received!

    Dear all I am new to this forum having discovered it after trying to research the "side effects" of sepsis. Back in September I had an infected gallbladder. I had it removed and instead of being just day case surgery I was admitted to hospital for four days and treated for sepsis. In the days leading up to it I felt very unwell with rigors, fever, mottled skin and honestly could have written out a will, I felt so bad. I've never felt so unwell and frightened in my life. I'm a nurse myself, but I continue to feel emotionally and physically drained by the whole experience. Psychologically I am still having "flashbacks" to the experience and worried about going back to working in a clinical environment and that I wont be able to take care of people properly, whilst I'm still trying to deal with all this. I'm terrified of becoming unwell again. Physically, I am managing to sleep but still wake up exhausted, have not yet returned to work and not doing all the usual things I used to love - swimming, being out all the time, shopping, even going to work in a job I used to love. I've withdrawn from friends and social gatherings because I tire so easily which is making me feel even more depressed. I've been to the GP for repeat blood tests and scans which have all come back normal. I guess my question is could all this be related to "post sepsis syndrome?". I'm only 36 and to be so incapacitated from normal life is sending me crazy, I used to be non-stop on the go. I wasn't in intensive care or anything, just treated on the ward and I just wonder if I am going crazy and if it's all in my head or if this is something that happens after sepsis? I'm so frustrated and have had a few panic attacks (which I'd never ever had before). I've been seeing a counsellor who has been amazing and trying things like meditation but I just need to know is there an end to it and does life ever get back to normal?
  10. 1 point
    Larry

    Have I got Post Sepsis Syndrome?

    Hi Natalie Great advice and support from the forum members as always. I am sure you can see all the problems you are experiencing are very common during recovery. The poor understanding and awareness of sepsis recovery can make it feel a very lonely place to be at times. We have a helpline at the Sepsis Trust, it is manned by trained nurses who have a lot of experience caring for people with sepsis and a good knowledge and understanding of recovery. You can call and talk to them about your recovery and ask questions you may have. They can be contacted Monday - Friday 9 -4 pm by calling confidential freephone number 0808 800 0029. Sepsis Helpline
  11. 1 point
    Richard

    5 months since kidney surgery

    Thank you Ian, Kind of smiling here. Just got up from laying on the couch. My deadline to complete my project today, got pushed to Friday, so I thought I'd take a break knowing I had more time. Still filled with guilt (working on it, but admitting it so others who might feel the same way can get an example of how knowing about something, doesn't mean we can easily live it out (like taking it easy, when all we want to do is get back to what our lifestyles used to be like.) I DO still have such a hard time understanding and accepting the difference between "feeling like I'm being lazy", being tired, exhaustion and fatigue. Ironically, after talking with my Physical therapist, he is really supporting my understanding about feeling fatigued vs my not trying hard enough to go longer on the treadmill. Update: The great effects I felt from my B12 shot last week feel like they've worn out. Looking forward to Friday for another. I'll speak with my new GP to ask her about this. Thank you again! Richard
  12. 1 point
    red squirrel

    new sepsis test

    https://www.bbc.co.uk/news/health-47279072
  13. 1 point
    red squirrel

    5 months since kidney surgery

    Hello Richard, welcome to forum. your current symptoms are something that i and many others im sure can identify with and sound quite normal considering what you have been through.i also arrived at sepsis via what was thought to be a kidney infection post surgical .its taken me along time and with a great deal of resistance on my part to come to terms with sepsis and what that actually means for me as far as recovery/timescale is concerned bearing in mind that no two patients or recoverys are exactly the same i have read as much as i can both on and off this forum and would encourage anyone to do the same. this forum and the help of other members have helped me to manage my expectations in that regard. recovery will come although this can be painfully slow at times, you have been through so much over the past few months so in that sense its still early days, we had some great support from the sepsis nurses on here i know you cant phone them but im sure you could email them, they were very helpful to me and my wife.at the risk of repeating what you already know...give yourself the time that you need...be good to yourself....rest when you need to.....take whatever help is available.just one step at a time. wishing you recovery. kind regards ian
  14. 1 point
    Magicwebby

    Any insight is welcome

    CharleyH2O, I am replying as a survivor now enjoying life after 5 years when it all seemed lost - I’m afraid it can take a while! Please read this as a message of hope and possibility. I had frequent admissions with liver infections needing drained each time, before my gall bladder was removed, and this gave me extreme Sepsis. I was in ICU for 7 weeks on life support and dialysis, my son came home from Australia as he was told I would not make it. Recovery took a while as I learned to walk again and I was treated for severe depression during this time. I developed an incurable blood disorder when I was better, and this meant regular draining of my spleen and the treatment gave me diabetes requiring frequent insulin injections each day. I am now healed, and deeply grateful for so much - the NHS care, both physical and mental, was extraordinary. And not least, the devotion of my wife and family was unstinting. I have welcomed my second grandson now, and look forward to each day. This has taken time, and many ups and downs, but the joy of restored life is so precious. I wish you blessing and strength through this time, and look forward your better news. Love and blessing. Brian W.
  15. 1 point
    Gillianflutes

    Any advice gratefully received!

    Hi! First of all I just want to give you a big hug! We are all on an unexpected journey, that we didn't ask to go on and yes, our lives are now very different. I had Sepsis in July 2015 and what you have written was basically me too, expect I am a bit older (53 then and 56 now). I was competing in triathlons, running half marathons and had always lived a 'healthy' life. The consultant told me that being so fit is how I managed to survive the Sepsis. I wrote a blog for a while called 'Believe!' (on wordpress) and that summarised some of my ups and downs, including some of the things I did to help myself 'get back'. Roll forward to December 2018 and am I back to what I was? No, is the answer, but I have gradually (VERY gradually!!) come to the belief that I was given a lesson (the biggest one of my life) and I now completely appreciate the life I have. I am living my 'new normal'. I have had to take early retirement from my post as head teacher of a rural primary school, because I do not have the physical or mental stamina for the job anymore. However, I am currently setting up a new business called 'AndBreathe...'. I cannot work full time, but this business is focussed on wellbeing, sharing the tools I have used, and still use, to get me through the ongoing challenges that I still face. I might not be running any more half marathons but I can run (not so fast or intensely, but I can run) and I can go out on my bike (not time trialling but a good cycle enjoying the countryside) and I am back loving a swim now and again. The main thing I am left with is the fatigue, which is mostly manageable now. The only thing I haven't completely figured out is that if I have a rush of adrenalin (excitement, stress, too much going on), my body crashes big time after the adrenalin wears off. I haven't figure out a way of easing that reaction. There is a group on FB called Sepsis Warriors. I have found them to be a very supportive group. I tried a couple of other groups but found then to be too depressing. This is absolutely NOT an advert, but I am now an EFT practitioner and would be happy to Tap with you, if you would like? Have a look at my website www.andbreathe123.com The most important piece of advice is to be kind to yourself. Don't beat yourself up. You WILL find that not everyone understands and you will definitely find who your true friends are. Maybe that isn't such a bad thing?! Take your time and focus on the small steps. I know how hard that it but cherish the small things. Best wishes Gillian x
  16. 1 point
    So - in case you haven't the noticed the #Sepsis world on social media going mad lately, its because teams all over the country are converging on Westminster to raise awareness of Sepsis Some have already started their long journeys with teams from Scotland, Wales and England pedalling hard for the cause Hope to keep this min-blog updated as a random record of events and happenings along the way. If you want to add any info, you can add comments and photos etc here or tweet to @sepsisforum and I'll pick up from there. We are supporting all riders, their wonderful support teams and all well-wishers but in particular and on this occasion, #TeamSollis will feature here. To start things off - here is just one reason why the team is taking to the long hard road ... Use the "follow" button top right to get blog updates! If you want to support - feel free to help the cause here https://www.justgiving.com/teamsollis/
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