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Everything posted by MarkDUK

  1. Thank you to everyone who came to our meet up in York today, with special thanks to Larry for making the journey t'north.
  2. Dave, welcome to the forum and to the survivors club. Bluntly, sepsis has made a good effort in trying to kill you and would have done so but for top ambulance people,antibiotics and your good health. If someone had met you late at night and kicked you about, strangled you, bruised you internally and poisoned you before leaving you I guess you'd feel dreadful for weeks after and this is what sepsis has done. Beating it early gives you a big chance of a full recovery although in the next few weeks you can feel exhausted and suffer pain. But as I said, it's understandable. Most folks make a full recovery and often its because they have listened to their body regarding tiredness and done no more than able to do. Keep positive and please share youe ongoing improvements. Mark
  3. Hi LindzV, some sepsis survivors find that they suffer limb pain, especially in the legs post sepsis. More can be read about this by searching post sepsis syndrom on the main site. As you are pregnant I suggest you advise your GP to be certain it's not anything else. My wife had difficulty with her hands whilst pregnant so 'unusual' things can happen when pregnant, however I'm happy to say that within 5 days of giving birth her hands were perfect. Mark
  4. More people are affected by sepsis in the UK than 1st thought and consequently costing the NHS 'billions' more. http://www.itv.com/news/2017-02-20/uk-sepsis-trust-study-sepsis-costing-uk-15-6-bn-a-year/
  5. Good to hear about the parking. I've heard that there is a park and ride here for folks coming by train. Looking forward to meeting you
  6. No words can ever be good enough to give you at this time. If you need answers regarding sepsis and the cruel way it took your mum please call UK Sepsis Trust 0800 389 6255. At anytime please share your thoughts with the forum and I dearly hope that in doing so it will give you some comfort. Mark http://sepsistrust.org/support/bereaved-support/
  7. Hi Linda (so much better than Moz!) , I do hope you can make it and at least keep me company . Larry a medic from the Trust will also be there. Mark
  8. Please note that the support groups are for 'people affected by sepsis.' They are for survivors, bereaved, carers etc.
  9. I'm jumping the gun on this as it hasn't been officially announced; The York Group will be on 12th March 2017 12-14:00 at Monks Cross Shopping Centre. Please pencil in your diaries.
  10. http://journals.lww.com/ccmjournal/Abstract/2006/01000/The_effect_of_age_on_the_development_and_outcome.3.aspx Cited over 500x so should be good
  11. I'm going to do that David. What a great way to bring sepsis awareness to those on the frontline. Thanks for posting, Mark
  12. That's interesting Supertractorman. How did you get involved in the Patient Bank Programme? I see real benefits in this. Mark
  13. Pleased to read that Moz and Crossland are looking at joining the new York group. I live near enough to take part also
  14. Hi Tricia, thank you for your sharing your story, it's a very brave message. I cannot give any words to ease your pain, I can only hope that posting this message and sharing your tragic story aids your recovery. I'm a survivor of sepsis and I see myself as being very lucky as nearly a 1/3 of folks getting sepsis in the UK will lose their battle. The messages of 'could it be sepsis?' and the 6 signs of sepsis are getting out there and since my sepsis in 2009 things gave improved in the UK but the loss of your husband is still 1 too many. The therapy you are having must be very difficult for you but also very important. The UK Sepsis Trust have a very good support team and they can be contacted on 0800 389 6255. They have medics that you can chat with that have experience of treating sepsis in hospitals and are a fantastic source for any unanswered questions you may have. Keep in touch if it helps. From past experience of this forum your brave message is already helping others facing bereavement through sepsis, in that they are not alone.
  15. ???? yes just about following. Good for you doing everything you can to improve your health. I had a back fusion in 2009 from where I got an infection and sepsis with both attacking the op site. Unlike you I've run a bit scared from follow up scans. My wife wants me to go back due to my chronic pain (fentanyl et al) but I don't want another op so little point (in my mind) going for a scan.
  16. Thank you pennym, being 'fit and healthy' is reassuring. BTW Thanks for passing on the sepsis literature to your docs, doing so could save a life or at least make the docs more aware of the struggles some survivors face.
  17. Back in 2009 (pre Trust) I was sent home from hospital and had to be readmitted and after several hours and with my wife constantly questioning medics I was tested had sepsis and remained in hospital 8 weeks. In 2017 (post Trust) my neice post natal called an ambulance and was straight away put onto IV antibiotics. She had sepsis but left hospital on oral antibiotics within the week. What a massive change since UK Sepsis Trust have been raising awareness. They in my opinion saved my neice. One unfortunate part of the story. Her husband called the maternity ward and told them her symptoms which included high temp, shivering, pain in her legs. He was advised to give her a paracetamol! When he called again due to worsening condition he was told she couldn't come back onto the maternity ward, take her to A&E. It's a surprise to me that knowing sepsis is the biggest killer post natal the ward staff were not better trained.
  18. Peter, thanks for posting a very positive update and I wish you the best of health in 2017
  19. Wease thanks for sharing your story. Red & Bob thanks very much for your views. I thought that giving info would end with psychosomatic symptoms but agree being prepared is safer than ignorance.
  20. Thanks Bob. The leaflets were a great help to me too. My question though is about my niece who has what I'd call minor sepsis on t b e scale of things, although sepsis is a critical illness. Would a leaflet making you aware of worst case scenario aid recovery for such a person?
  21. Hi Grandmapeggy, welcome to the forum and may I congratulate you for being a 'survivor' Sepsis can knock your whole body out of sync and what you are experiencing is quite common regarding taste. In my own case every meal I asked my wife if she had added salt. Everything tasted very salty and in the early days fruit yogurt was about the only thing I enjoyed. It's very early days for you and I'm sure your taste will improve although if you are like me it may never be like it once was but you will again enjoy food just probably different foods. I like very sweet and very sour but cannot eat spicey foods. Your comments re your throat does sound as though it's a consequence of all manner of things being shoved in there, not a medic, but I would be inclined to get a medics opinion to rule out an infection. I had what you describe and it turned out to be laryngitis. Keep the faith and give yourself time. Mark
  22. Hi Folks, I'd really appreciate your thoughts. As I survivor I was relieved to read the information leaflets on UK Sepsis Trust. At the time I couldn't understand why I was having a tough time after beating sepsis and it was through the leaflets I got understanding and real comfort. My niece gave birth this week and was taking back into hospital a day after leaving. She had an urine infection and sepsis. Fortunately the ambulance people administered antibiotics immediately and now 2 days later sepsis isn't a threat and they have taken her off one antibiotic. Are the leaflets a good thing when sepsis wasn't severe, (my view as I was in hospital for 8 weeks including HDU) and she is likely returning home after only 5 days? Reading again the leaflets they inform across all levels of sepsis but do tend to be relevant most for severe sepsis and I'm worried I will be feeding her fears of something that might not happen. So when is the best time to give the information if at all? Thanks, Mark
  23. I found the following very interesting. Real survivors being given an opportunity to tell their stories and concerns for our carers.
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