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About eddie1968

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  • Birthday 26/02/1968

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  • Sepsis Aware
    Sepsis Survivor
  1. I have had diabetes for 8 years now. I have unfortunately had severe sepsis twice with long HDU/ICU stays. I do suffer from eczema and prone to foot/leg ulcers. Every time I visit my GP I seem to be on long courses of antibiotics for some infection. Now just looking at posters in my GP’s surgery or hospitals I see posters from the NHS and the WHO about the overuse of antibiotics causing resistance. Are diabetic patients at risk of antibiotic-resistance due to constant prescribing of necessary medications to treat infections ? Does this make diabetics more susceptible to Sepsis due to regular uses of antibiotics ? I would like to hear from anyone especially health professionals. Thanks Edward
  2. Yes cognitive impairment is extremely common after what you went through. I still have concentration issues and go “blank” searching for words to find and not being able to spell simple words sometimes. I would say I am not as sharp as I used to be. Best wishes and a speedy recovery. Edward
  3. Anyone who has to go through our experiences do get mental health issues like PTSD and Depression Post-Discharge. I’ve now moved on and don’t have many flashbacks etc anymore. Paradoxically I now have very little anxiety after escaping death twice and have a stronger personality now. Our experiences are similar in ICU, my family thought I was brain damaged too, but delirium was the cause and when you’re anaesthetatised for nearly a month your brain is not going to jump start just like that, it takes up to a week to normalise. Stay safe and best wishes. Edward
  4. I was diagnosed with PICS (Post Intensive Care Syndrome) in 2012. I had Severe Chest Sepsis which caused hypoxia. I was mechanically ventilated for 3 weeks whilst in an induced coma. I got a lot of information from the charity ICU Steps. Most of the medical literature say it usually lasts for up to two years. I’m 6 years Post Discharge and still have lingering issues. Does the UK Sepsis Trust work with other organisations involved with Critical Care (for example ICU Steps) in researching these syndromes ? Only recently has it made the headlines that these syndromes exist. I do however think the NHS is not addressing the issue and post-discharge support is poor. I had to seek help from my GP which could have been addressed by an outpatient appointment with an ICU nurse Post Discharge as they are the specialists. Are there any NICE guidelines on this ?
  5. What a coincidence - the RAH, I now get bad vibes going there lol. I was on Ward 26 then HDU first sepsis admission. Second sepsis event HDU then ICU. Yes - I can relate to the hallucinations and psychosis, severe sepsis can cause delirium. I was put in an induced coma for roughly 3 and a half weeks so I could be ventilated. On being wakened from the coma I was utterly delirious for days and they kept me in ICU until my faculties returned. What happened in hospital is still a jigsaw of memories (most accurate information came from nurses and my relatives). Hope you get better.
  6. I have had the unfortunate fact that I have had severe sepsis twice, long ICU stays and long recovery times. I had a lot of PTSD and was diagnosed with PICS (Post Intensive Care Syndrome). 3 years on I can only suggest you seek help from your GP. I was delirious and hallucinating and had terrible paranoia (thinking the nurses were out to kill me). I had just been woken up from an induced coma whilst being on a ventilator for a month. I had terrible nightmares and flashbacks for 2 years but I would say I am on the mend now. Take care OP and everyone else. Edward
  7. I had no Post ICU follow up care and this service is patchy across the NHS. Post ICU PTSD is now being recognized in medical literature and GP awareness is better. I found out that a simple explanation of your illness, treatment and care can help a lot. I had to find out most information from family and my surgeon but the jigsaw of memories has never been completed due to sepsis and being put into a coma and ventilated for weeks. I had ARDS and severe sepsis so being hypoxic and septic I was in and out of consciousness until I was sedated and intubated. A follow up discussion with an ICU nurse after you have recovered physically should be standard and would help people developing PTSD and depression/anxiety issues.
  8. I can totally empathise with your story too. I've spent long periods in ICU/HDU twice in my life with severe sepsis which were life threatening. PTSD and anxiety is very common after a episode of sepsis. I had flashbacks and anxiety for 2 years since my last time in 2012. I'm diabetic and am very susceptible to infections and sepsis and get nervous when on antibiotics thinking the worst is going to happen. I've recovered now physically and mentally but it did take it's toll on me. I hope you are on your way to getting better and wish you all the best. Good luck. Edward x
  9. I've got a persistent"brain fog" due to swings in my blood sugars. I find it hard to concentrate and am taking ever increasing amounts of insulin. I'd like to take up some vocational training to enhance my hobbies but am tired easily and not easily motivated. I will take a look at the link you posted and thanks.
  10. Hello. Just an introduction. My name is Edward and I am from Central Scotland. I am 47 years old. I have had severe sepsis twice and sepsis once in my life, probably being a diabetic just made me more prone and currently take insulin. Most of my problems started with bowel disease. In 2009 I had developed an abscess in my colon, was very feverish but the abscess burst inside me and the pain subsided in hospital. I was treated with IV antibiotics for a week then discharged. I was given an outpatient day colonoscopy and it was recommended that I would have the descending colon resected and I was admitted two months later. Initially the surgery seemed to have went well but 5 days later I developed a fever of 40C, was delirious and screaming for fans and water from what little I can remember. It was discovered that the joined up pieces of bowel had came apart and I had severe sepsis and parts of my bowel were gangrenous. An emergency operation was performed, bowel cleaned and drained and a colostomy was performed. After 7 weeks I was discharged. Three years later I was finally approved to have the colostomy reversed. The surgery went well but I developed ARDS and chest sepsis and was transferred to ICU and ventilated for 4 weeks in an induced coma. Spent another 3 weeks in hospital but took 10 months to recover. Last time I developed sepsis was last year when a wound on my leg developed into cellulitis. Treated at home with antibiotics. Yes sepsis can hit you anytime, I've beaten two severe episodes but I am definitely NOT complacent.
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