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red squirrel

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red squirrel last won the day on 28 February

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About red squirrel

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    Male
  • Location
    UK
  • Sepsis Aware
    Sepsis Survivor

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  1. Hi Richard thanks for the update. sounds like your asking lots of questions which is good, but please dont be disappointed with yourself in any kind of way, try to bear in mind what you have been through. It took me a long time to understand the difference between tiredness . fatigue .and exhaustion. and post sepsis i was exhausted in a way i had never been before. i can really understand your frustration. but try not to push yourself too hard at this stage if its leading to diizzyness at that point we start to risk injury and all that can mean.Really glad you put your foot down about not trying hard enough, i have met many doctors who dont seem to know much about sepsis let alone physios. wishing you recovery. kind regards ian
  2. Hi Natalie and welcome to the forum. firstly you are certainly not any kind of drama queen , i have read from other members of here who contracted sepsis post childbirth, it might be worth reading arround when you feel up to it. in the meantime you might find it helpfull to speak to one of the sepsis nurses 0808 800 0029. apart from this forum and the members on it they were the only source of information on sepsis and recovery that we could find at the time. my sepsis was post surgical and i have had to learn the hard way to manage my expectations regarding recovery. in the beginning i pushed myself to hard and then paid the price. knocking myself out for a week or more only to have to start again. i know it may not feel like it right now but you are doing really well. you both survived ,and thats wonderful news. recovery takes time and there will be setbacks along the way. but there is help available .you are not alone in this anymore. kind regards ian
  3. https://www.bbc.co.uk/news/health-47279072
  4. Hello Richard, welcome to forum. your current symptoms are something that i and many others im sure can identify with and sound quite normal considering what you have been through.i also arrived at sepsis via what was thought to be a kidney infection post surgical .its taken me along time and with a great deal of resistance on my part to come to terms with sepsis and what that actually means for me as far as recovery/timescale is concerned bearing in mind that no two patients or recoverys are exactly the same i have read as much as i can both on and off this forum and would encourage anyone to do the same. this forum and the help of other members have helped me to manage my expectations in that regard. recovery will come although this can be painfully slow at times, you have been through so much over the past few months so in that sense its still early days, we had some great support from the sepsis nurses on here i know you cant phone them but im sure you could email them, they were very helpful to me and my wife.at the risk of repeating what you already know...give yourself the time that you need...be good to yourself....rest when you need to.....take whatever help is available.just one step at a time. wishing you recovery. kind regards ian
  5. Thats great news Nasir, an understanding and informed gp on sepsis and PSS is a massive plus,and no biopsy is also great news. wishing you recovery kind regards red
  6. hello elric, really sorry to read of your recent experience and i hope you may be improving ,although you mention its in the past its actually only 5 weeks or so since the procedure a,rigid cysto under a g/a is no joke and the uretha is a sensitive bit of kit,im not surprised at many of the symtoms your experiencing ,Normally rigid cystos under g/a are not performed in increments of less than 3 months to enable recovery,so try not to worry about the lenth of time this feels like its taking,It sounds like you are well read on this so continue to do the things that can aid recovery,drink plenty of water,steer clear of tea and coffee, pomegranate is a good substitute,move arround as much as you are able,gentle walks at the start,a good relationship with your gp is also helpfull,if the pain continues they may suggest different pain meds with an anti inflammatory. The pain will subside although it may not feel like that right now, You dont mention if a biopsy was taken or what the results were so i,m hoping that the major cause of concern has been ruled out. Recovery from sepsis can be hard enough without the complication of an invasive procedure, be good to yourself.take the time you need,and be sepsis aware. i,m glad you have felt some reasurance from speaking to someone from the trust,i know the times i have spoken to them they have been most helpful.we also have some sepsis nurses who post on here also,there are sepsis support groups in some regions might be worth finding out if there is one near you,when you feel able to travel. kind regards red
  7. Hello Nigel and welcome to the forum,there isnt an introduce yourself thread on here ,maybe there should be. there is a sepsis surviors section which is open and there is a members area also which is open to registerd members.People often post there stories,writing it down can be an important part of recovery, kind regards ian
  8. Thats a massive increase be interesting to know how the formula / data was calculated to arrive at this change in stats,having a sepsis register sounds like a good idea.
  9. Hello Meecie. sorry i am not a medic so cant advise,Can i suggest you phone trust 0800 389 6255 im sure one of the nurses might be able to explain. kind regards Red
  10. Hello Dave and welcome, from reading your post it sounds normal to me, and from reading all the other replies i hope you feel some reassurance. Its taken me quite a while and with a great deal of resistance on my part to come to terms with sepsis and what that actually means as far as recovery/timescale.and for some ongoing issues.Iv read as much as i can both on and off this forum, and iv used the trust telephone when iv been concerned with worrying symptoms and would encourage anyone to do the same.I work in a very physically demanding environment so iv had to learn to manage my expectations in that regard and make changes where possible. Its only a few weeks since you were discharged so in that sense its still early days,but your doing really well, although it may not feel like it at times. recovery will come,although this can be painfully slow at times. Be good to yourself. Rest when you need to. Take whatever help is available kind regards ian
  11. Members have recently posted about how they can and do raise awareness within the NHS regarding sepsis.this is for anyone who would wish to do the same but are unsure about how to make a start.You dont have to be a patient/survivor to do this, although patients are encouraged. In the first instance you can sign up to your local hospital news letter either by post or email this will inform you of any new initiatives taking place and how you may help. Most hospitals now have a dedicated patient and public involvement department and in some cases can be contacted directly.where you could help in areas such as..... Become a patient leader Take part in projects and initiatives Joining the register of readers to review patient information leaflets Take part in decisions that affect how services operate Join a patient- led assessment team How to plan and provide services Help junior and interns become more patient aware take part in how to develop and change the way they provide services Become a secret shopper for the hospital. there are others also but they vary by region and they are not all sepsis- related iv done some of these myself and have found them on the whole to be immensely rewarding, Recovering patients may find some of these activities a little tiring as some may involve a whole day visiting wards, form filling and travel so pace yourself.some hospitals can arrange travel in certain circumstances also. regards Red
  12. Some interesting research reported in science daily. Mount Sinai hospital researchers have by the use of a small amount of a chemotherapy agent managed to slow the bodys inflammatory response to sepsis and other infections. http://www.sciencedaily.com/releases/2016/04/160428152314.htm Red Sorry whilst this link will direct to the site you would still have to type sepsis into the search box and scroll down to researchers discover potential treatment for sepsis and other infections its a hassle i know but worth it.
  13. Hello you could also phone the trust 0800 389 6255 they may be able to help.oxford journals seem to be cited alot regards Red
  14. HI Mark ,im really glad your niece,s sepsis was caught very early on,and i hope she goes on to make a full recovery with none or very little long term effects. But like Wease has already mentioned there may be issues further down the line.by passing on a leaflet all you would be doing is raising awareness,and thats no bad thing,it may assist her or someone she knows one day, sepsis is still sepsis,and as you and i have so often said , we are not medics and sometimes even the medics cannot determine how someone may be affected. kind regards Red
  15. hi Marky, i phoned the office for some advice after discharge and more recently also ,and have found them to be kind and knowledgeable both to myself and my partner who contacted them with her own concerns about my situation. kind regards Red
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