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Larry last won the day on 5 March

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About Larry

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  • Sepsis Aware
    Healthcare Professional

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  1. Hi Sallp, Sorry to hear you have been so poorly and are still struggling with recovery from sepsis. You may find it helpful to discuss your recovery with one of the support nurses from the UK Sepsis Trust, you can talk to them about how you are feeling and ask any questions you have. Sometimes it can be very helpful just to talk through what happened and how you are feeling with someone in confidence who understands sepsis and sepsis recovery. Healthcare professionals are not always good at looking after themselves and taking the time to talk about how they are feeling. I have provided links below to how you can contact the team and to our sepsis recovery booklet. Sepsis Support Team Sepsis recovery Booklet
  2. Hi Maz People are often surprised by their recovery and how long this can take. You can talk about your recovery to one of the sepsis support nurses at the UK Sepsis Trust . They are all trained nurses with a lot of experience of sepsis, you can discuss what has been happening and have the opportunity to ask questions. If you select the link below you will find out the various ways you can contact them. UK Sepsis Trust Support Larry
  3. Hi Natalie Great advice and support from the forum members as always. I am sure you can see all the problems you are experiencing are very common during recovery. The poor understanding and awareness of sepsis recovery can make it feel a very lonely place to be at times. We have a helpline at the Sepsis Trust, it is manned by trained nurses who have a lot of experience caring for people with sepsis and a good knowledge and understanding of recovery. You can call and talk to them about your recovery and ask questions you may have. They can be contacted Monday - Friday 9 -4 pm by calling confidential freephone number 0808 800 0029. Sepsis Helpline
  4. Larry


    Hi The forum is a great way to find support, you soon realise that you are not on your own and many of the problems you are experiencing are common following sepsis. Like Mark said you can call the sepsis helpline and speak to one of our trained nurses, they have a lot of experience of sepsis and the many problems that can occur after. You can tell them what has been happening to you and ask any questions you may have. It can help just talking about what has happened and how you are feeling now with someone who understands sepsis. Kind regards Larry
  5. Hi Isabel I am so sorry to hear that you are feeling so desparate. You are not on your own there are many sepsis survivors who struggle with its aftermath for many years. It may be helpful to talk to one of our support nurses about how you are feeling. You can contact me directly on larry@sepsistrust.org We can talk via email or better still I could arrange to call you. We are hear to listen and suggest things that may help you. Have you spoken to anyone about how you are feeling, it is important to share, many of the effects of sepsis are often hidden, and after a while those affected keep many of their problems to themselves, believing friends and family are weary of listening. Our support service is completely confidential and you can be as open and honest with us as you wish to be. Best wishes Larry Lead Nusres support UKST
  6. Hi Edward Having diabetes does affect your immune system and can make you more vulnerable to getting some infections. It is possible for any infection to develop into sepsis so yes there is an increases risk for you to get sepsis. The most important thing is if you think you may have an infection seek medical attention and get assessed to see if you need treatment. Similarly If you have any wounds or cuts you should keep an eye out for any signs of infection and get treated quickly. It is the infection that becomes resistant to an antibiotic rather than the individual person, so you are not going to develop resistance yourself. It is important that doctors don't prescribe antibiotics unnecessarily as this will result in more resistant infections but this is a decision they will make based on their assessment of each patient and in your case will have to be considered along side your diabetes and your previous episodes of sepsis. If this is worrying you then you can talk to a member of our support team by calling 08088000029. The support team are trained nurses with experience of sepsis and some of the problems that can occur after. You can discuss your concerns with them and they can answer any questions you may have. Kind regards Larry https://sepsistrust.org/support/
  7. Hi, Marky is right you are not going mad. So many people ask this question because neither you or those around you expect recovery to be so difficult and to take so long. The time it takes to recover varies greatly from individual to individual, 6 - 18 months is a common period of time for recovery, some people can feel better after only a few weeks and a few can take several years. If you would like to talk to a member of our support team you can do this by calling our confidential support number 0808 800 0029 Mon - Fri 9 -3 They are trained nurses who have a lot of knowledge about sepsis and recovery, you can talk to them about what happened to you and ask any questions you may have. I here is a link to our information booklets you will find some useful info on sepsis and recovery. Remember you are not on your own, many people are experiencing similar recoveries with the same problems as your self. It is important to let those around you know how you are feeling and share information about recovery with them.
  8. Dry and flaking skin, fatigue and muscle aches are all really commonly experienced problem during recovery from sepsis. This is very early days for you, the advice given by Gillian is really important, you should look after yourself and don't demand too much of yourself, you have been very ill and it will take time to recover. Everyone's recovery is individual, there is no set time to return to work, this very much depends on how you are feeling, and the type of work you do. The limiting factors tend to be fatigue and the ability to concentrate on your work. Often when recovering from Sepsis its not until you try to return to work you realise the demands it will put on you. If you have an occupational Health or Well Being department at work it would be sensible to talk to them and your line manager about what has being happening to you. Take along some information on sepsis recovery for them to have a look at, I have provided a link to our information books, we can post hard copies out to you if this would help. Many people return to work on a phased return and ease themselves back into to work slowly. The key message is to be kind to yourself, take things steadily and talk to those around about how you are feeling. https://sepsistrust.org/support/resources/
  9. Really good advice from Gillian. If you would like to chat more about your recovery you can call 0808 800 0029 and speak to one of our support nurses. They will be able to talk to you about what to expect during recovery and answer any questions you have.
  10. Hi Rachel Very good advice from other members of the forum. This is really early days with respect to your recovery and you are doing incredibly well to be back at work. Here is a link below to our support page, if you select find a Facebook page you will find details of survivor Facebook groups, You can also call our helpline 08088000029 if you want to discuss your recovery or you have any question you want to ask us. https://sepsistrust.org/support/
  11. Hi Rahdal Sorry to hear you are having such a difficult time with your mum, psychological and cognitive problems can occur in someone recovering from sepsis such as low mood and poor memory and concentration. The problems your mum is having seem to be more severe that the usual post sepsis problems people experience and she may need some expert help. If you haven't already done so you should get her assessed by a mental health professional, its is a concern that she is expressing suicidal ideas and behavior is dis inhibited compared to what is normal for her.
  12. If you are a Sepsis Survivor the UK Sepsis Trust would like to ask for your help. We have created a survey asking about your experiences following sepsis. This is for UK survivors only. The purpose of the survey is to provide us with information on what has been happening to you since you left hospital. The survey is anonymous and no personal details or IP addresses that may identify you are collected. It will take you about 12 mins to complete the survey, please select the link below if you would like to take part. https://www.surveymonkey.co.uk/r/WVYW56W
  13. Hi Michelle Libby no longer works for UKST, my name is Larry and I joined the UKST last year and along with Emma another member of the support team, we have taken on Libby’s work. In case she hasn’t seen your post I will contact Libby to make sure she sees it. I am unware of a specific link between CVST and Sepsis, but having said that, I can’t recall having come across any other Sepsis survivor that has suffered a CVST. Major illness and immobility would certainly increase your risks of forming clots. When in hospital patients are assessed for the risk of acquiring a clot and many are given anticoagulation injections, fitted with graduated compression socks and encouraged to mobilize early to reduce this risk. Sorry I can’t be more helpful than this if do discover anything else I will send you a message. Kind regards Larry
  14. Hi Dave It is certainly worth trying to claim for PIP. Success depends on meeting very specific requirements as to what help you need as a result of your sepsis, so its worth doing a little research before completing your application. Many people are unsuccessful at the first stage but it is worth being persistent appealing against the initial decision. I have provided a link to the Citizens Advice information on claiming PIP it provides detailed information and some examples on how to respond to the questions on the application form. Good luck with your claim, you are working hard at getting back to work and making a good recovery, you should be supported in your efforts to do this. http://www.citizensadvice.org.uk/benefits/sick-or-disabled-people-and-carers/pip/ Larry
  15. Hi Skyehammer Sorry to hear you are still having such a difficult time. Many people do suffer with loss of confidence and poor self-esteem following sepsis, this is often compounded by problems that affect our ability to perform as we did prior to sepsis, such as extreme fatigue, memory loss on poor concentration. Psychological therapies can be useful in helping deal with some of the psychological problems that occur following sepsis, there are different types of therapies available and it can be the case of finding the right one for you. You are absolutely right we need more research into the long term effects of sepsis, the mechanisms that cause all problems that occur and most importantly how we manage these problems and support survivors through recovery. There also needs to much more awareness about PSS, this includes the general public and healthcare professionals, if we can get more people to understand and acknowledge PSS it may help make it a less lonely place to be for survivors. If you would like to talk about to one of our support team about your recovery, then you can contact us on 0800 389 6255 or info@sepsistrust.org
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