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Larry

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  1. Like
    Larry got a reaction from Mark Sollis in Have I got Post Sepsis Syndrome?   
    Hi Natalie
    Great advice and support from the forum members as always.  I am sure you can see all the problems you are experiencing are very common during recovery.  The poor understanding and awareness of sepsis recovery can make it feel a very lonely place to be at times. We have a helpline at the Sepsis Trust, it is manned by trained nurses who have a lot of experience caring for people with sepsis and a good knowledge and understanding of recovery.  You can call and talk to them about your recovery and ask questions you may have.  They can be contacted Monday - Friday 9 -4 pm by calling confidential freephone number 0808 800 0029.
    Sepsis Helpline
  2. Like
    Larry got a reaction from Mark Sollis in Help   
    Hi
     
    The forum is a great way to find support, you soon realise that you are not on your own and many of the problems you are experiencing are common following sepsis.  Like Mark said you can call the sepsis helpline and speak to one of our trained nurses, they have a lot of experience of sepsis and the many problems that can occur after.  You can tell them what has been happening to you and ask any questions  you may have.  It can help just talking about what has happened and how you are feeling  now with someone who understands sepsis.
     
    Kind regards
     
    Larry
  3. Like
    Larry got a reaction from JULIE CARMAN in How can i keep going   
    Hi Isabel
     
    I am so sorry to hear that you are feeling so desparate. You are not on your own there are many sepsis survivors who struggle with its aftermath for many years.
     
    It may be helpful to talk to one of our support nurses about how you are feeling. You can contact me directly on larry@sepsistrust.org
     
    We can talk via email or better still I could arrange to call you. We are hear to listen and suggest things that may help you.
     
    Have you spoken to anyone about how you are feeling, it is important to share, many of the effects of sepsis are often hidden, and after a while those affected keep many of their problems to themselves, believing friends and family are weary of listening. Our support service is completely confidential and you can be as open and honest with us as you wish to be.
     
    Best wishes
     
    Larry
    Lead Nusres support
    UKST
  4. Like
    Larry reacted to Gillianflutes in How can i keep going   
    Your post really hit a chord with me. We do all have worse than usual days and I hope this is just one of them for you. Life is most definitely not what it was, and often when I think things are settling into more of a manageable routine, something else happens. The past couple of days I am feeling quite dizzy and light headed and I can't quite figure out why. But I haven't started writing to talk about me!
     
    Mindfulness has genuinely helped me a lot over the past few years. Having a couple of good friends/acquaintances can help, but you are right when you say that no one really understands what we are going through. I have learned to be more gentle with myself, take more time to do things and pace myself. I was an extremely driven, active person so the transition to post-sepsis life has been extremely challenging for me too. We have to gently check ourselves when we look back on 'how things were before Sepsis'. We have to accept the differences and try to make something positive out of what has happened. That might seem impossible but somehow, somewhere, there is someone who has suffered more than we have and we have to be grateful for what we do have, no matter how little.
     
    For now, please accept a big cyber hug across the Internet! Find 3 things to be grateful for today and celebrate them. No matter how small they might seem. Xx
  5. Like
    Larry got a reaction from Mark Sollis in Antibiotics and diabetes   
    Hi Edward
     
    Having diabetes does affect your immune system and can make you more vulnerable to getting some infections. It is possible for any infection to develop into sepsis so yes there is an increases risk for you to get sepsis. 
    The most important thing is if you think you may have an infection seek medical attention and get assessed to see if you need treatment.  Similarly If you have any wounds or cuts you should keep an eye out for any signs of infection and get treated quickly.
     
    It is the infection that becomes resistant to an antibiotic rather than the individual person, so you are not going to develop resistance yourself.  It is important that  doctors don't prescribe antibiotics unnecessarily as this will result in more resistant infections  but this is a decision they will make based on their assessment of each patient and in your case will have to be considered along side your diabetes and your previous episodes of sepsis.
     
    If this is worrying you then you can talk to a member of our support team by calling 08088000029.  The support team are trained nurses with experience  of sepsis and some of the problems that can occur after. You can discuss your concerns with them and they can answer any questions you may have.
     
    Kind regards
     
    Larry
     
    https://sepsistrust.org/support/
  6. Like
    Larry got a reaction from Nana Cam in Sepsis Survivors Survey   
    If you are a Sepsis Survivor the UK Sepsis Trust would like to ask for your help. We have created a survey asking about your experiences following sepsis. This is for UK survivors only. The purpose of the survey is to provide us with information on what has been happening to you since you left hospital. The survey is anonymous and no personal details or IP addresses that may identify you are collected. It will take you about 12 mins to complete the survey, please select the link below if you would like to take part.
     
     
    https://www.surveymonkey.co.uk/r/WVYW56W
  7. Like
    Larry got a reaction from Mark Sollis in Sepsis Survivors Survey   
    If you are a Sepsis Survivor the UK Sepsis Trust would like to ask for your help. We have created a survey asking about your experiences following sepsis. This is for UK survivors only. The purpose of the survey is to provide us with information on what has been happening to you since you left hospital. The survey is anonymous and no personal details or IP addresses that may identify you are collected. It will take you about 12 mins to complete the survey, please select the link below if you would like to take part.
     
     
    https://www.surveymonkey.co.uk/r/WVYW56W
  8. Like
    Larry got a reaction from Moz in Sepsis Support Groups   
    It was a pleasure to meet such great people, and thank you so much for all your efforts in organising the event, i look forward to the next one.
  9. Like
    Larry got a reaction from red squirrel in Sepsis Support Groups   
    West Midlands Sepsis Support Group
     
    On  Sunday, 5th February 2017 between 10.30 – 12:30 hrs
     
    Come along, this is a relaxed and informal meeting, a chance to meet over a cup of tea and chat to  others who have been affected by sepsis.
     
    Asda Supercentre
    The Community Room (inside Asda)
    Minworth
    Sutton Coldfield
    B76 1XL
     
    For more information please contact on
    0800 389 6255 Or info@sepsistrust.org
     
  10. Like
    Larry reacted to Wease in Struggling to get back to "normal" life   
    Thank you Red, thats a very helpful reply. Agree- all the usual methods of getting back to fitness don't seem to work! There is no control over what the body wants to do! 
  11. Like
    Larry got a reaction from marky in Post Sepsis Struggle   
    Hi Marky
    .  
    Sorry to hear you have had such a bad time.  many of the problems you are describing can be explained by sepsis, feeling, tired, lack of concentration, not sleeping well, no appetite, run down and low. Unfortunately these problems can persist for some time after sepsis 6 to 18 months typically, this can be less for some and occasionally  longer other cases.
     
    There are  unfortunately no quick fixes, we recommend a good diet and regular periods of rest.  Set small goals for yourself each day,  increasing the length and intensity of activity as tolerated;  don't be too hard on yourself and listen to your body if it is telling you that your are doing to much stop and take a rest. It is sometimes useful to keep a diary to monitor your progress and record and symptoms.
     
    Have you looked at the support pages on our website you may find this information useful for you and your family to read; we can send you this in printed booklet form if you would prefer to read this.  You can also talk to our support team here at the UK Sepsis trust on 0800 389 6255, our support nurses can talk to you and answer any questions you may have, alliteratively you can contact us via email or Facebook. 
     
    Larry
    Sepsis Support Team
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