Good afternoon. I raised an issue a few days back now and have received no comments to date.
Last evening my husband became unwell again, only ten days home after being in hospital on IV antibiotics for nine days and early admissions to. In all since January he has had three UTI's, a chest infection sepsis and now yet another UTI all of which have been treated with antibiotics. Is neutropenic levels have been very low then improved slightly to go back down again yesterday. We are both worried about this ongoing situation and he has just made a statement which shocked me to the core. He said that he wonders how much more his body can take and whether or not he will ever get well again. I cannot give him an answer to this. The medical team just keep saying that they will not be surprised to see him in A&E again (joy) and that all they can do is IV antibiotics yet again. A long term catheter and a stent from his right kidney are 'aliens' in his body but he needs them both. The reality is without the catheter he will have infections because his bladder does not empty fully since radiotherapy but with the catheter and with low white blood counts he will get infections. It seems a no win situation. Has anyone else suffered like this and had an alternative to the catheter suggested? If not which will be the safest option ? Catheter in or out ? We have an appointment with the urology team in two weeks but two weeks is a long time where infections/sepsis is concerned.