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Isabel

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Isabel last won the day on 26 May

Isabel had the most liked content!

About Isabel

  • Rank
    Advanced Member

Profile Information

  • Gender
    Female
  • Location
    UK
  • Sepsis Aware
    Affected by Sepsis

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160 profile views
  1. Hello there. First of all I am sorry you havent had feed back. Normally a notification comes up on email. I havent had one but really not sure if all members get. I haven't been on forum quite a while due to many appointments and problems so would have replied. I do hope you have some help or answers by now but cant relay to your husbands as I'm not familiar with that. Isn't it so very frustrating when the patient or carer/family cant get answers or help. THAT I can relate to as my GP's say they dont know what to do and i feel I dont want to bother them anymore. Is there an
  2. Morning Charley H20 I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter. I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery. Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need. Sepsis UK support phoneline are invaluable, plea
  3. Hi there I know it is 9 months since you wrote your struggle on the forum. I was going through it and for some reason yours came up. Dont know why but I thought I must reply and see how you are doing. How are you and Layla ?. With 2 other children you had a mountain to climb. Thank goodness for your husband. He soynds so supportive. Rest and pacing yourself has been emphasised to me so many times and I only have myself to worry about. Its so difficult to do that at times with having a family but it sounds like you have understanding around you. It does get frustrating but I am h
  4. Peter please accept my apologies for not replying sooner. It was lovely of you to respond. I have had surgery on one hand. Yes you're quite right about arthritis. It has affected many places. My thumb joints have crumbled and on August 7th had a bone taken from my forearm to make a new thumb joint. Isn't that amazing. Its still an ongoing recovery but much easier. I had nurses twice a day for two weeks but found opinions on painkillers differed with my GP. Last week i was in two days having my 6 monthly bladder procedure which has been done since sepsis. It went well no problems
  5. Hi everyone I thought I would give you an update since I last wrote. Larry has been a great help and support also Julie, Brian and Gillian thank you for your replies. What would I have done without you. It just shows what a difference the forum, talking and sharing worries can make. So please hang in there and share. I have been doing a big effort at pacing my day. I know not every day is the same. I would usually go from one thing to another never thinking tomorrow is another day....if I feel ok. I feel good today ( which is why I am writing ) and have told my sister I do. S
  6. Hi Julie. I am sorry for my delay. I have emailed Larry today as I've been having painful times. I haven't looked into NLP yet. But once I have had hand op pre assessment June 5th I can look into it. Bournemouth is only about 10 minutes away but I did think maybe Bristol was my nearest one. I can see your logic in saying how much better I would need to be to do anything to help a support group. We have several places around with potential for getting a hall. You have worked so hard to have started groups. Also to get that far does give me hope.I suppose we all want to run before we
  7. Morning Nicole Everything you feel is what we are all feeling or have felt. Gillian is so right you dont have that luxury of lying down or sitting when you need to when you have a young family. I have been getting some invaluable help from here so please write. I locked myself from asking because i thought its been over 5 years and my expectations were unrealistic. Its a balance of pacing what you have to do. (Hark at me saying that when I've only just been told that ). But its true. You dont have to do things to be a super mum you are just by being here in theirs lives. At suc
  8. Morning Julie I had a good helpful chat with Larry. I have always been honest with my GP about how i feel so they know how things are. My usual GP has told me they are there and I can go when i need to. It was the new one that threw my safety net when he said the doctors dont know what to do for you. I wont be seeing him again. I have sore problems with my stoma and am going to hospital today about it. So that doesn't help also my bag leaked and soaked the bed BUT I'm still coping so great eh. If you can do it so can I. Tomorrow is a new day new start. ???? thank you very be
  9. Dear Julie Lovely to hear from you. I'm Christchurch in Dorset. I would love a support group. I dont know what it takes to raise one and how much to start one. A mammoth task I would think. I will look up NLP. Larry is ringing me as you can relay better than emailing. Plus my laptop has given me up so typing this on a phone isnt good. Think because my hands operation soon I will look at ipads. My expectations were probably too high too soon. However I know I have come a long way. Its just others who cant understand ...take a tablet or we all get pain they say....so I dont ever t
  10. Oh bless you Brian. I will certainly look into that and like anything I've been given will give it 100%. I am so pleased you have been helped as that gives me hope.i suppose I am a person that loves to help others but need to have boundaries of when to rest. Also i tend to think ... Ive had a rest but maybe not enough. I dont know..my head is always on the go !!!! Isabel
  11. Thank you all so much for replying so very quickly. I used to respond on forum to members to encourage but have not felt like talking about me in case I dragged someone down. The most positive thing today is to have written to you. I'm glad I did. I have done everything my GP has asked as I have PTSD and been on medication for that 3 years. I've done 18 months at pain clinic and had CBT. Also Steps to well being. Larry I will email you and would appreciate a call. Not connected I know but I have to have both hands operated on as thumbs have crumbled and wrists weak because of it. I ask mysel
  12. Gillian what a lovely cyber hug. Thank you xx
  13. Thank you all so much for replying so very quickly. I used to respond on forum to members to encourage but have not felt like talking about me in case I dragged someone down. The most positive thing today is to have written to you. I'm glad I did. I have done everything my GP has asked as I have PTSD and been on medication for that 3 years. I've done 18 months at pain clinic and had CBT. Also Steps to well being. Larry I will email you and would appreciate a call. Not connected I know but I have to have both hands operated on as thumbs have crumbled and wrists weak because of it. I ask mysel
  14. I had sepsis after surgery in 2012 resulting in 6 months in hospital. Sedated in ICU. I wrote my story on the forum in July 2015. My medical problems are many resulting from it.i have come to a point I dont want to keep going. I have had amazing doctors but recently a new GP has said they just dont know how to help me. I dont know what to do. I'm so tired. I have a busy life I'm 71 and live in McCarthy and Stone apartment. Have wonderful friends here. I make cards . social things. So I'm not hiding away. Its just pain, problems all the timep and when I am indoors I am exhausted . I'm on 1
  15. Hi there. You are certainly not alone in your dreams , thoughts or worries. I was in ICU with sepsis and once I was transferred to an acute ward I had a visit from an ICU person to ask me questions about dreams and thoughts. Apparently it can be quite common after being sedated/intubated. They were awful dreams, being chased by animals and mauled some you couldn't even make sense of. Another of all my family lined down a store escalator but were angels surrounded by chandeliers. Thoughts of feeling guilty because although we are alive our minds are thinking dying. As soon as I cou
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