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Isabel

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  1. Like
    Isabel got a reaction from Magicwebby in Any insight is welcome   
    Morning Charley H20
     
    I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter.
     
    I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery.
    Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need.
    Sepsis UK support phoneline are invaluable, please when you can ring.
    We too are here as someone will always understand what you feel. There is no right or wrong way to feel. Just do what you are doing.
    THE BEST YOU POSSIBLY CAN. Thank you for finding us. Take care of yourself.
    Many blessings to you all.
    Best wishes
    Isabel
  2. Like
    Isabel got a reaction from oliverjonesUKST in Any insight is welcome   
    Morning Charley H20
     
    I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter.
     
    I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery.
    Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need.
    Sepsis UK support phoneline are invaluable, please when you can ring.
    We too are here as someone will always understand what you feel. There is no right or wrong way to feel. Just do what you are doing.
    THE BEST YOU POSSIBLY CAN. Thank you for finding us. Take care of yourself.
    Many blessings to you all.
    Best wishes
    Isabel
  3. Like
    Isabel got a reaction from Mark Sollis in Any insight is welcome   
    Morning Charley H20
     
    I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter.
     
    I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery.
    Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need.
    Sepsis UK support phoneline are invaluable, please when you can ring.
    We too are here as someone will always understand what you feel. There is no right or wrong way to feel. Just do what you are doing.
    THE BEST YOU POSSIBLY CAN. Thank you for finding us. Take care of yourself.
    Many blessings to you all.
    Best wishes
    Isabel
  4. Like
    Isabel reacted to Isabel in Any insight is welcome   
    Morning Charley H20
     
    I hope with each reply it gives you a small bit of comfort. Its a traumatic time for you also trying to help your daughter. We all send our thoughts to you your husband and daughter.
     
    I too had my bowels destroyed and into my stomach. I had it pumped twice a day of infection after surgery. Also weekly visits to surgery.
    Its a big shock to your husbands system and you will be struggling to know what to think. It is a long recovery but each day is a new one that I really hope gives you all the support you will need.
    Sepsis UK support phoneline are invaluable, please when you can ring.
    We too are here as someone will always understand what you feel. There is no right or wrong way to feel. Just do what you are doing.
    THE BEST YOU POSSIBLY CAN. Thank you for finding us. Take care of yourself.
    Many blessings to you all.
    Best wishes
    Isabel
  5. Like
    Isabel got a reaction from JULIE CARMAN in How can i keep going   
    Hi Julie.
     
    I am sorry for my delay. I have emailed Larry today as I've been having painful times. I haven't looked into NLP yet. But once I have had hand op pre assessment June 5th I can look into it.
     
    Bournemouth is only about 10 minutes away but I did think maybe Bristol was my nearest one. I can see your logic in saying how much better I would need to be to do anything to help a support group. We have several places around with potential for getting a hall.
     
    You have worked so hard to have started groups. Also to get that far does give me hope.I suppose we all want to run before we can walk.
     
    I hope you are having a good day too. Have a good weekend.
     
    Best wishes and thank you
     
    Isabel x
  6. Like
    Isabel got a reaction from Gillianflutes in How can i keep going   
    Morning Julie
     
    I had a good helpful chat with Larry.
     
    I have always been honest with my GP about how i feel so they know how things are. My usual GP has told me they are there and I can go when i need to. It was the new one that threw my safety net when he said the doctors dont know what to do for you. I wont be seeing him again.
     
    I have sore problems with my stoma and am going to hospital today about it. So that doesn't help also my bag leaked and soaked the bed BUT I'm still coping so great eh. If you can do it so can I.
     
    Tomorrow is a new day new start. ???? thank you very best wishes Isabel x
  7. Like
    Isabel got a reaction from Gillianflutes in How can i keep going   
    Gillian what a lovely cyber hug. Thank you xx
  8. Like
    Isabel got a reaction from Gillianflutes in How can i keep going   
    Thank you all so much for replying so very quickly. I used to respond on forum to members to encourage but have not felt like talking about me in case I dragged someone down. The most positive thing today is to have written to you. I'm glad I did. I have done everything my GP has asked as I have PTSD and been on medication for that 3 years. I've done 18 months at pain clinic and had CBT. Also Steps to well being. Larry I will email you and would appreciate a call.
    Not connected I know but I have to have both hands operated on as thumbs have crumbled and wrists weak because of it. I ask myself can I cope with it but the knowledge I could be painfree must be better...I hope. Bless you and anyone.
    Love Isabel
  9. Like
    Isabel got a reaction from Magicwebby in How can i keep going   
    Oh bless you Brian. I will certainly look into that and like anything I've been given will give it 100%. I am so pleased you have been helped as that gives me hope.i suppose I am a person that loves to help others but need to have boundaries of when to rest. Also i tend to think ... Ive had a rest but maybe not enough. I dont know..my head is always on the go !!!!
     
    Isabel
  10. Like
    Isabel reacted to Isabel in How can i keep going   
    Oh bless you Brian. I will certainly look into that and like anything I've been given will give it 100%. I am so pleased you have been helped as that gives me hope.i suppose I am a person that loves to help others but need to have boundaries of when to rest. Also i tend to think ... Ive had a rest but maybe not enough. I dont know..my head is always on the go !!!!
     
    Isabel
  11. Like
    Isabel got a reaction from eddie1968 in Recovering from sepsis   
    Hi there.
     
    You are certainly not alone in your dreams , thoughts or worries.
     
    I was in ICU with sepsis and once I was transferred to an acute ward I had a visit from an ICU person to ask me questions about dreams and thoughts. Apparently it can be quite common after being sedated/intubated. They were awful dreams, being chased by animals and mauled some you couldn't even make sense of.
    Another of all my family lined down a store escalator but were angels surrounded by chandeliers.
     
    Thoughts of feeling guilty because although we are alive our minds are thinking dying. As soon as I could I wanted to get my will sorted and everything done. Maybe that's a process you go through. I don't know.
    Doesn't that sound morbid when I have been told so many times at least you are here. Without knowing, each day takes a step forward even though we feel we are going backwards .
    I think we are all amazing...well done ...  say that especially on the low times .. I have come a long way now and so will you. Hard I now.
     
    We both and many others were on that brink that I was told our body very slowly recovers but our brain does not keep up that same pace.
     
    I have PTSD but with 18 months of help and writing down things, which really helps... I do find night is the worst time because suddenly there is time to THINK and over think....well I do. I wish there was a group in the south for us to talk about these things but thank goodness for this site. I have been so lucky to get so much help with the medical side but unless you are post sepsis no one can understand. 
     
    I have probably ranted on but just wanted you to know we understand and care very much.
     
    Isabel
  12. Like
    Isabel got a reaction from Mark Sollis in The BBC News Page online today 10th March   
    Morning Dave
     
    Thank you for sending that. Well done to Patrick
     
    How so true the magic words. Not have I sepsis but " How do you know it isn't Sepsis !!! ".
     
    I am still struggling four and half years on after sepsis destroying my inside. I was a patient recovering from an operation, if you like I was ' lucky ' to be there and rushed to surgery.
    (My story is on my forum)
     
    I am in the older age and I know I have been told it's longer to recover.
     
    I am amazed the common factor we are struggling with is .......
     
    We want to do so much AND do try.
    Why are we thinking just as if we have turned a corner pain, aches  and extreme tiredness hit us again.
     
    I know the answer is a bit at a time, aren't we all guilty of not doing that. But we don't sit there and think I cant try, I wont try.
     
    So please if you are reading this you Are doing well, think what has hit us. If you had a really bad case of flu or another illness you would sign off from work or rest wouldn't you. Magnify this big and that puts it into perspective. 
     
    Boy am I great at putting into words what I don't always practice.....but I will.
     
    Well done to you all and me for the hard work we put in.
     
    I hope you have a good weekend.
     
    best wishes
    Isabel
  13. Like
    Isabel reacted to davegore in The BBC News Page online today 10th March   
    http://www.bbc.co.uk/news/health-39219765
     
    good to see the word and the symptoms being spread for more people to see
     
    Dave
  14. Like
    Isabel got a reaction from Palmiter in Relatives of sepsis survivors   
    Hi Clare
     
    How comforted (if that's the right word) I was to know I am not alone in hearing your experiences (and your replies), not only struggling still 4 years on from having sepsis, but to hear the reaction not only of friends but some family as well. Peoples words and feelings can leave you feeling you are not trying, even some things being in your mind and leaving you feel very alone.
     
    I am nearly 69. The day the medical staff were fighting to save my life I feel in some ways the 'old' me died because it has changed me so much.
    Changed because of my struggle, importantly losing friends, my social life, changed because I had to sell my home and move to a retirement apartment even though the people are lovely. That's not to say I don't make a big effort to do things. But it all takes so much out of me whether its going out or doing simple tasks.
     
    I lost three stone and looked so bad that now I look well, to others and having put on weight, I am told to 'focus' on being positive from people who have no idea what sepsis is and admits they cannot imagine what it is like. Also to think on how many other people so much more worse off than me. Because of time passing yes most everyone expect, as I have found I should be back to normal.
     
    I was watching a program on sufferers of a particular illness and the effects on theirs and the family life when I realised I had never seen a program on sepsis. Maybe in past times there has been. But I do wonder, it would be a great documentary talking about symptoms to look out for, the effect it has on survivors and the family and peoples perception of it and making them understand how debilitating it is if you survive it. Also the change it makes in family life too. Or am I trying to race ahead.
     
    Certainly for me it would have made my journey much less stressful if my friends and family were more knowledgeable about it.
    I now have PTSD (post traumatic stress) but I am lucky I have very good GP's and a very lovely counsellor .
     
     
    I do wish you all the best and please don't feel alone.
    Best wishes
    Isabel
  15. Like
    Isabel got a reaction from Mark Sollis in Relatives of sepsis survivors   
    Hi Clare
     
    How have you both been.?
     
    Thank you for replying. I know how on some days its difficult with every day things to be done. I am very very pleased you have each other I know it is difficult even then.
     
    It is lovely to know you are writing about your experiences. It does help.
     
    I wish four years ago it was suggested to my family by the hospital, when I was in sedated in ICU like I have read on some members stories when they or the family were advised to.
    My daughters could have given it to me to read. It highlights the better days as I was told, you can so easily forget when you are not so good. Hindsight is a wonderful thing though.
     
    When I first spoke to Libby on the team, she was the first person to suggest it and said it can help.
     
    Since then my GP and my counsellor too. I have been writing a diary each day and decided to underline a positive thing I did or saw, something I listened to on the radio or tv which I really liked. Nothing major, my counsellor thought that was an excellent way of seeing at a glance good moments.
     
    Like Marc I had to learn to walk again, from zimmer frame to walking stick and I now have a rollator which has helped me a lot to get around. So that is a big improvement.
     
    Well I suppose I had better try and get some sleep so will say goodnight.
     
    Look after yourselves
     
    Best wishes
    Isabel
  16. Like
    Isabel got a reaction from mich_stoerr in Length of recovery? Is this normal?   
    Hi Michele.
     
    I will reply more later in depth as I am not at home .
     
    Let me say to you, only my experience , this exhaustion is very normal to have and please don't think otherwise.
     
    It's good your GP is checking things because we are not medical ones. In the meantime go with how you feel.
    If you are tired, exhausted.... rest when you can.
     
    The irony of this is, I am telling you this but don't listen to the advice!!!!
    We all I am sure, try to do too much while trying to get on with our life.
    I know I am my own worst enemy. Do too much when I am feeling bit better and get knocked back. I am learning 'slowly' to do little a time. I know...hard to accept isn't it ?
     
    I hope when I write to find you are resting a bit in between getting on with things that have to be done.
    Take care
    Best wishes
    Isabella
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