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Skyehammer

Immune System Post Sepsis .

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   Hi Guys ,

 

 It's been nearly 4 years now since I contracted sepsis -

 

 The first few months were taken up learning to walk all over again [ I had a spinal op in 2011 ] and coming to terms with what had happened to me - my sole kidney , lungs and eventually my heart all failed while I was wired up to a Life Support Machine for three weeks . I wasn't aware that I had ' died ' for several minutes and that the Doctors were convinced that I was going to die until I was home for 6 months , that came as a bit of a shock I must admit and I was grateful to my wife that she kept it away from me while I was still at hospital [ 3 months ] .

 

 Anyway , as I've said , 4 years have nearly passed and since then I've had my share of ordinary illnesses , colds , chest infections etc for which I've needed antibiotics and steroids [ I'm asthmatic ] .

 

 My son recently went down with a heavy cold / flu ,  followed by my wife - both suffered from coughs , sneezes and runny noses .

 

 Since the 6th October 2016 however I have been experiencing ' flu-like ' symptoms without the usual coughs , runny noses and chest infections - my blood pressure was on the low side [ 106/64 ] during the first week and my pulse rate wavered between 89-102 which is high for me [ usually around 76-78 ] , naturally I got a bit worried  , temperature was a constant 38.1- I was also experiencing some sort of ear infection as I was tottering over to the left upon standing up - I explained all this to one of my Doctors who examined me and couldn't find anything wrong , my breathing was fine  . She did agree that my blood pressure was low and did not examine my ear [ despite me saying I thought I may have an ear infection ] 

A week later I visited my usual Doctor who also couldn't find anything wrong but did take my bloods . Two days later the results were in - ' kidney and liver are fine , white blood cells are showing you have an infection ' .

 After a third visit to my Doctor I was given antibiotics to treat my ear infection ' it does look a bit red ' [ after 10 days of suffering from a possible ear infection ] .

 Now I do take pain killers because of my back problem and allopurinol because of long term gout/arthritis , but the feeling of having ' flu ' persisted so I also took paracetamol [ 2 x 3 times a day ] which has given me some relief - it's now 31 days since I began feeling unwell , I think I'm feeling slightly better after nearly completing my course of anti biotics but I can't be 100% sure - my blood pressure is now quite good for a 60 year old [ 123/72 ] , pulse is still high [ for me ] at 89-90 - temperature is 37- 37.1 .

On 4/11 I was sent for a chest x ray ' to start ruling things out ' after blood tests showed my white blood cells were still high . I'll get the results tomorrow but I'm sort of quietly confident that will be ok .

 

 Has anyone else suffered from a mystery virus which seems to hang on with no signs of leaving since they contracted sepsis ? I feel as if I have flu , then after taking two courses of paracetamol I feel a bit better [ betwen 11am and 3pm ] , then I don't feel too bad up till 8pm when I go to bed feeling exhausted - by morning I feel ' yukky ' again .

 Can it be my immune system has taken a knock since December 2012 and isn't dealing that well with colds and flu or am I just a bit unlucky ? Could I be suffering from Vitamin D deficiency [ I haven't been outside for 31 days ] ?

I have never experienced this kind of illness before and am slightly worried .

My wife is also going into Hospital for a knee replacement op on the 9th November so I need to feel better pretty darned quick .

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hello skyehammer it can be a scary time waiting for results,i used to find it a bit of a white knuckle ride to be honest....still do.

its good that you are seeking help and advice from your doctor and the various tests serve to identify and rule out certain things,i have been described as a patient with a compromised immune system and as such my consultant advised constant vigilance,its been longer than 4 years for me since experiencing these issues but only 11 months post sepsis,and i still have mystery viruses and infections often...one just last week,which after a visit turned out to be a virus.

the thing about antibiotics is whilst they mostly clear the infection they also wipe me out regarding immunity and i have found after a course im then open to anything and everything untill my immunity re.balances..that can mean a throat ,ear eye tooth sometimes one sometimes together.other medications also have there own side effects,and as you know no two cases are the same.

it wouldnt be a bad idea to top up the vitamin D,maybe your gp could help with that.

your doing the right thing being pro-active about this and i can understand the worry,maybe speaking to one of the sepsis nurses on here might be helpful also.

 

kind regards

Red

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Mines happened 5 years ago and one outcome was my lymphatic system became mutated,no Dr has seen that happen before, however it takes me ages to get over minor things such as colds, my bodies breaks out in abscesses and cold sores all the time!I guess its "normal" for us survivors...take care x

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  Thank you ever so much for your replies and I can only apologise for not coming back sooner .

  My wife , Jennie was due to have a knee replacement op last Wednesday and on the Monday my Doctor told me that my x ray results were showing something ' mysterious ' and that a Consultant would need to see them . I asked her whether by ' mysterious ' could it be cancer but she just replied ' Well , the Doctor at the Hospital only said ' mysterious ' I'm sure there's nothing to worry about  ' - but worry I did until Thursday when I was told that I had an infection in my lower left lung ,  my Doctor added that she would make an appointment for me to see a Specialist to get down to the bottom of this illness .

   I'm now thinking it could have been the chest infection all along but my Doctor wants me to see a Specialist - 

 

 Anyway , I brought my wife home today , she is now the proud owner of a new titanium knee , it was a bit tricky coming down our steep path especially as it was pouring with rain , she's happy to be home and I'm happy that the ' mysterious ' x ray result turned out to be a chest infection - as to why I still feel as though I have the flu , well perhaps a Specialist can get to the bottom of that , in the meantime we carry on breathing and carry on surviving [ there's a comedy film there I'm sure ] , enjoy every day that comes along - 

 

  Thank you all for your kind words and support .

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Hi Skyehammer

 

Sounds like Post sepsis syndrome, as a sepsis sufferer you may still have sepsis markers in your blood, for some reason the medical profession don't always pick up on this, I have had to explain all this to my own Doctor & Dentist, they don't understand how PSS works!  

I'm glad your wife is home & well, have a look at post sepsis syndrome on the Sepsis uk site, also, I found looking at the symptoms or SIRS very helpful,

 

Stay well

 

Pollypockets 

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 Dear Pollypockets ,

 

 You may have hit the nail on the head - on the 16th November I had to call the Doctor out to see me , my blood pressure had fallen to 76/43 and I had to take to my bed - my temperature was still on the high side and apparently my face was a nice shade of yellow .

 I was admitted to our local hospital here on Skye and immediately hooked up to a bag of Tazocin [ extra strong antibiotics , 4 times per day  ] - the Doctors also told me that my blood tests were showing problems with my pancreas / gallbladder / liver . After 4 days I was transferred to Inverness where I remained for the next 5 days [ still hooked up to Tazocin , this time 3 times per day ] - I was told I was being treated for ' inter abdominal sepsis ' and a blockage [ possibly a stone , polyps , infection , sinister ] - after 3 seperate scans there were definite diagnosis . I was due an ultra sound camera [ down the throat ] on Friday [ 25th Nov ] when a power cut hit the xray department , - the Surgeons explained that they would carry out another prodecure afterwards [ opening up a bile duct via incision ] but seeing as there was only one person who could do it [ his partner was off that day ] and he was busy with another operation I was told I could go home to await a letter when they could carry out the two procedures . 

 If they find nothing sinister they will then take my gallbladder out [ possibly at a later date ] , my appointment came through for the 28th December , so I have time to eat my turkey , pull a few crackers and watch the latest Christmas offering on tv . 

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Hi Skyehammer

 

So sorry to hear that you've had a relapse, sounds quite serious! Glad you got the right treatment.  

 

Wishing you well with your opp!!

 

Enjoy your Christmas Dinner,  

 

Pollypockets  :)

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Hi Skyehammer

 

Many sepsis survivors complain of recurring infections following sepsis, they often describe them as mini  bouts of sepsis with brief episodes of raised temperature and fever that often come and go quickly.  This can cause a lot of anxiety as many survivors worry about their sepsis reoccurring.  Your doing the right thing in getting investigated by the specialist, it would be worth making the specialist aware of  the possible problem with immunity post sepsis as doctors do not always consider this. Like the guys said you can always call us here at the UK Sepsis Trust  08002896255 to chat about things.  I hope your wife continues to make a good recovery.

 

Larry

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Hi Skyehammer

 

Many sepsis survivors complain of recurring infections following sepsis, they often describe them as mini  bouts of sepsis with brief episodes of raised temperature and fever that often come and go quickly.  This can cause a lot of anxiety as many survivors worry about their sepsis reoccurring.  Your doing the right thing in getting investigated by the specialist, it would be worth making the specialist aware of  the possible problem with immunity post sepsis as doctors do not always consider this. Like the guys said you can always call us here at the UK Sepsis Trust  08002896255 to chat about things.  I hope your wife continues to make a good recovery.

 

Larry

 

Larry,

 

Reading your comments above, they are so true and I am nearly 2.5 years since having Sepsis and have continual Urine Infections. It is reassuring that others are having " flashbacks" as I thought I was imagining it myself.  I just cannot understand why my Doctors will not try different antibiotics to see if one will cure me. All I ever get is Nitrofurantoin or Pivmicillan surely there is something else out there as I believe until I am infection free I will never get rid of Prostatitis which I am sure Sepsis gave me after a Prostate Biopsy.  Is there much research being done after Sepsis has caused us all damage ?. 

 

David

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  Hi Everyone ,

Thanks to you all for taking time out to reply , I appreciate each and every message .

Well , I had the Endoscopy Scan on the 28th December 2016 and I'm happy to report that everything looked ' normal ' - the results have been sent to the Surgeons at Raigmore so at the moment I'm waiting to hear what they have planned for me - probably they'll remove my gallbladder but they had spoke of making an incision in a bile duct before operating on the gb , not sure if they'll still do that with the results being normal .

 

 Thanks again for your support .

 

  Peter xx

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               Dear Mark ,

Thank you for your kind words .

I haven't heard anything from Raigmore as of yet concerning the operation on my gallbladder but in the meantime I am being given a Dexa Scan to ascertain how my bones have been affected since my spinal op in 2011 .

When I complained of that long lasting ' mild flu symptoms ' an appointment was made for me to see a Specialist but before the appointment came through I fell ill with gallbladder / liver problems then upon discharge I was seen by the Specialist [ hope you're following this ! ] who asked me whether I had been diagnosed with osteoarthritis [ I told her ' No ' ] so she is investigating this matter - It's not as if I'm not getting my fair share of NHS attention !  :)

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???? yes just about following. Good for you doing everything you can to improve your health. I had a back fusion in 2009 from where I got an infection and sepsis with both attacking the op site. Unlike you I've run a bit scared from follow up scans. My wife wants me to go back due to my chronic pain (fentanyl et al) but I don't want another op so little point (in my mind) going for a scan.

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