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marky

Post Sepsis Struggle

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I'm think I'm having an issue with post sepsis syndrome.


I was sent to hospital in April with what they thought was a UTI. I had a catheter inserted (very painful), was given IV antibiotics and pain relief and had bloods taken. After about 4 hours of waiting on a bed in A&E my temp shot up and i was moved to resus.


It wasn't until the next day that they said it was Sepsis. So for 4 days they were looking for and abscess in the urinary tract, but couldn't find anything. I was discharged on day 4 with a bag of antibiotics and that was it.


I was not getting any better so i visited my GP who said the abdominal pains I was having were to be expected and was sent home again. A week after being discharged is was still no better and declining again, my wife took me to A&E and I was given more IV antibiotics and sent home.... i felt better for 2 days, but then declined yet again. A visit to a different GP on day 12, and he was more sympathetic and realized that the pains were abdominal and not urinal and prescribed antibiotics for an intra-abdominal abscess. After about 4 more weeks, a CT scan and a Cystoscopy I finally got to see the urologist and as we thought they confirmed no issues in the urinary tract, BUT there were diverticula present, which probably caused the Sepsis (but not confirmed and discharged from hospital care)......


so now we are 8 months on and I finally got a referral to a gastroenterologist, but I am now feeling so tired, lack of concentration, not sleeping well, no appetite, run down and low! I'm not sure how to cope/deal with this.


Any advice would be gratefully received!


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Hi Marky

.  

Sorry to hear you have had such a bad time.  many of the problems you are describing can be explained by sepsis, feeling, tired, lack of concentration, not sleeping well, no appetite, run down and low. Unfortunately these problems can persist for some time after sepsis 6 to 18 months typically, this can be less for some and occasionally  longer other cases.

 

There are  unfortunately no quick fixes, we recommend a good diet and regular periods of rest.  Set small goals for yourself each day,  increasing the length and intensity of activity as tolerated;  don't be too hard on yourself and listen to your body if it is telling you that your are doing to much stop and take a rest. It is sometimes useful to keep a diary to monitor your progress and record and symptoms.

 

Have you looked at the support pages on our website you may find this information useful for you and your family to read; we can send you this in printed booklet form if you would prefer to read this.  You can also talk to our support team here at the UK Sepsis trust on 0800 389 6255, our support nurses can talk to you and answer any questions you may have, alliteratively you can contact us via email or Facebook. 

 

Larry

Sepsis Support Team

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Thanks Larry,

 

Reading the support and other members experience has made me realise that is most likely to be PSS. On top of the symptoms above i have dry skin on my face and eczema on my feet, that is along with stomach issues associated with the cause of the sepsis.

 

It has been difficult to have periods of rest due to work and family life, 2 kids and a professional wife, so it's me that does the housework and childcare...

It wasn't until about 3 weeks ago that I felt completely broken, mentally and physically exhausted! At least now I know I'm not going mad! just have to convince my GP now! Currently been signed of for 1 week, may have to take more. SSRI's upped from 20mg to 30mg.....

 

Regards

 

Mark

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Hi Marky,welcome to the forum,as larry has said PSS can be a major issue for many on here (myself included),its been 11 months for me now post sepsis,and a massive learning curve along the way.Your not mad,almost everything you have described has been and still can be normal for me,recovery can be a slow process with setbacks . when i overdo things to try and force the issue i then pay the price,i can be very stubborn regarding recovery,so iv ended up learning the hard way to manage my expectations,

Your body has been through alot and this may take some time,more time then you would wish,give yourself that time,be good to yourself,rest when you need to, take whatever help is available read as much as you can about sepsis PSS  PTSD  when you feel up to it,too much imfo can at times be overwhelming at first.

 

wishing you recovery

kind regards Red

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Had a chat with a friend just now who is a nurse and trains Doctors and Nurses in Sepsis. Unfortunately she is not trained in post sepsis, which i think is unfortunate.

i'm signed off this week and should be going back to work, but i don't think i can do it.....  will call the trust in the morning for advice... have too much to do tomorrow now!! ;-)

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hi Marky, i phoned the office for some advice after discharge and more recently also ,and have found them to be kind and knowledgeable both to myself and my partner who contacted them with her own concerns about my situation.

 

kind regards Red

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