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Speech symptoms

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Hi

 

I am about 18 months post sepsis, which occurred about a week following the birth of my son. I was in hospital for a week, luckily not in ICU just a ward and I had some one to one care at the start of my stay.

 

I still have some problems with my speech and I'm wondering if it is normal? When I'm tired I find it difficult to speak. It's like the words leave my brain but I can't get to my mouth quick enough. I often have to stop speaking mid sentence to get myself together and get the next word out or I stutter. The action of it at the time is just exhausting -and I feel like I'm slurring my words and everything is working very slowly. The next day the bottom half of my face aches and feels really drained like it's run a marathon or something. It only happens when I'm tired. I often have to tell my husband that I can't talk to him because I'm too tired. It's not really bothered me until now but I'm back at work now after my maternity leave and it seems to have having more of an impact on me. I know it's related to the sepsis as it is exactly the same feeling I had while in hospital. I found speaking exhausting and slurred my words a lot.

 

I mentioned it to my GP about a year ago and she just dismissed it saying that if I was slurring my words it might be sepsis, but it's not otherwise I'd be having it several times a week!

 

I guess I'm wondering if anyone else experiences this? Is it normal and will it go away in time or is this how I am now?

 

Does anyone have any tips on how to cope with it better?

 

Luckily I don't really have any other effects of the illness. I do have phases of completely exhaustion, which I suspect are related but it's hard to know if that's just part and parcel of having a child and not sleeping well!

 

Thanks x

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Hi! I am also about eighteen months post sepsis. When I am tired I do 'forget' words. Not so much the physical act of speaking but putting sentences together in my head and losing a basic, everyday word does happen. It is also exhausting trying to hide that it happens. Tricky as a teaching head teacher!!! I have just come through another 'blip' after a very good January. The past ten days have been difficult with the chronic fatigue weighing me down like a ten ton load. You say that you recognise your speech is difficult when you are tired. My symptoms also get worse when I am tired. If you are a mother of a toddler you will laugh when I say this but somehow we both need to pace ourselves better. Whatever that means in our individual lives. I know a couple of 'extra, unexpected' things happened last week, which meant I did a lot more than planned. I am pretty sure that's what led to the blip. For you, it is maybe resting as soon as your wee one goes to bed? I did phone UK Sepsis Trust yesterday and Larry acknowledged that there are often 'unnerving' blips in our recovery. Maybe knowing that we will have them but that we also get through them will help us. All the best. X

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Hi,

I'm 3 years in now, at first I couldn't even speak I could not remember words or get half way through and forget what I was saying. I started to write things down as it was hard work and I got embarrassed. I'm a bit of a chatterbox so found it really hard. I spent time have having with my speech, I still stutter and forget words but I practice when I'm on my own. People think I'm mad because I talk to myself but it has improved a lot.

Keep at it I had to learn to walk, talk, feed myself I was like a child.

Good luck x

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Thanks for sharing your experiences. Yes perhaps I need to take it easier sometimes. It's hard to know where the limit is and then even when you're up to it life still goes on and things come up, so what can you do I guess.

 

I do feel very lucky reading all your stories. It can't be easy to pick back up from being so unwell. Do you find it has got easier over time or do you reach a point where that's the best it will get. It would be handy to know where my expectations should be?

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I remain cautiously optimistic (overall) that life will continue to become more normal. I know that in so many ways I have got so much better. Progress just takes so much longer than I would like though?! There IS part of me that wonders if this is as good as it will get but I keep going. I practise yoga and mindfulness, I keep pushing myself (carefully) to run a bit more and walk up hills. I am nowhere close to where I was but little by little I will continue to keep trying. There ARE times that I despair but being negative will not help mentally or physically so I do my best to pull myself out of those dark places. Being in contact with people who have been through similar times can be helpful.

 

All the best! We are part of an elite group of people!!

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 I completely get what you are saying, I am only in my second week out of hospital and was at the GP this morning to discuss the fact that I am still having headaches which started when I was in hospital, but I find that I have the words in my head but getting them out seems the difficult part, it's not so much as a stammer, just like the words are on the tip of my tongue and almost seem to be stuck there, does that make sense?

 

The GP was reassuring in the fact that she said that many different symptoms may arise and also reiterated what lots of other people on here, and in life have said, these things take time, I kind of describe it as feeling as if I am in a bit of a muddle at the moment.

 

Dave

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Hello

 

I just thought I would update this in case anyone experiences similar in the future. I've recently been diagnosed with PTSD as a result my experiences. It turns out that the problems I have with speaking from time to time are in fact flashbacks, where I am reliving the experience of having sepsis. It's seems completely mind boggling to me, but if something reminds me of having sepsis in a specific way I feel all the things that I felt when I was at my sickest. Hopefully this can help someone else who is also feeling confused!

 

Get well soon everyone x

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